Well I went to see my new nero 3 day ago. I don't know what to think. He told me that I have optic atrophy ( I was told ON). he does not want to send me for an MRI untill I am eather on meds or I have a MAJOR flare( he did say that if I REALLY wanted one he could get one for me.). he was not conserned about my feet feling cold all teh time, the cold and tingling in my hand. He also did not understand what I was saying when I told him that I have started ro studder. I ttried to tell him that there are some words that I cant get out and I stumble over them, I have to stop what I am saying and try to think of another word to use. I go back and see him in 6 months. He has told me that I have only had one flare because I don't stillhave problems with my leg. I don't see how because my last nero told me that my leg that was effected was my 2nd one and from what I have read things that last longer than 24 hours is a flare.

He is the only one that i can go to right now. the other doc in about 2 1/2 hours away.

Sorry it wasn't a good visit. I wish you had another Dr that was closer. He just doesn't sound like he's the right Dr for you. Maybe he was just having a bad day and your next visit with him will be better.

Sorry about your dr. is he an MS Specialist? I would insist on an MRI of both brain and spine - with and without contrast.

Sorry to hear the neuro closest to you doesn't seem familiar with all the symptoms of MS.

Sue, if someone was to feel your feet or hands would they also feel them as cold?

To me my feet are cold and I have been known to wear socks 24/7 even in the summer but if my DH feels my feet he tells me they are warm. It's sensory as is the tingling and neuros really don't get concerned about sensory symptoms.

If you really want the MRI then tell your neuro but be sure you haven't had too many MRIs or too close together that your insurance won't pay for it. Just check with the insurance company first to be sure.

Other than that I'm not sure what you can do since he is the only option for you at this time

Sue,

Sorry about the entire situation. I hate to tell you this, but I don't understand a neuro that doesn't understand studdering. This happens to me, too. Doesn't sound like he is digging very deep for answers.

Any MS specialists aroiund?

Wishing you all the best and that you find some answers soon.e

They feel like ice to me but they do feel warm to my hubby, I HATE to wear socks but I wear them all the time now even to bed

There is no MS specialist around me. I think there is one in Philly but that is too far for me to drive in one day(4 hours).

I understand. That makes it tough, doesn't it. Please be persistent. I know that is difficult when you are not feeling well. Actually, it sucks! Fighting to get through the day and then you have to press on with having yourself understood and heard...or should I say heard and understood?


In my prayers

Have your only symptoms been tingling, cold feet and studdering (other then the ON/OA? Did your symptoms come on like an attack (relapse) then you went into remission?

If it is not ON (have you gone to an optho?), then the other symptoms could be from many things, ie. carpal tunnel, poor circulation/lack of exercise, vitamin deficiencies, etc.

Was it the "ON" that got them thinking MS?

(Sorry, I don't know your history...)

Cherie