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#1 | ||
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Newly Joined
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After over a year of on again off again mysterious issues and doctors telling me, "i dont know" or suggesting Im insane or remarking, "youre too young to have these issues..." and even an mri that showed nothing, I finally got an MRI done of my brain and spine. They found 2 or 3 lesions in my cervical spine which may indicate a demyelation disease. (Also a slight bulging disc in my thoracic spine... but I didnt have any back pain, so yeah)
I do not have lupus, lyme, or b12 issues oh and I dont have sjergions (or however you spell it).... I just turned 22 and I am a woman and I am from the NorthEast but currently live in Texas. We moved here 5 months ago (there are NO jobs in PA and its so expensive, I do not miss the state in the least). We moved here because we thought it was just a b12 issue since my last neuro told me my b12 was just a little bit off and just to take the vitamins and ill be fine. Well I did, and I wasnt. Also I was on the pill at the time and that frequently causes a dip i b12. My issue(s), get worse in the heat. A lot worse. I walk outside or step out of my car and bam! spasms and my leg wont lift right. Its like its stuck in a cement bucket that I have to drag around with me. Along with the right leg, my right arm often feels like it has RLS and its super annoying, or it will feel very weak and I cant use it well, or my right hand will keep dropping things. At times I get a shock down my entire spine when I bend my neck forward, so painful! It lingers for like 20min afterwards! Also at times I get this tight sensation around my rib cage. It doesnt happen often and I first noticed it when I was sick and coughing but then when I wasnt coughing it was very tight and I felt like I couldnt expand enough to breathe. Oh and "dryness" south of the border... which is unfortunate because Im recently married and want to enjoy that part of my life before it dies with kids and older age... haha. oh and does anyone get frequent UTIs? they always seem to coming around when my issues kick it up a notch too... Would cervical lesions cause these issues? How likely is it that it is indeed, ms? The MRI said they were t2, and there were no enhancing lesions. Which I guess means, non-active, which would make sense as I am not having too many issues the past couple of weeks. I can make it flair up by stressing myself and making my body really hot, but Im not fully sure Im in an "episode." It also gets worse during menstruation, which makes sense since my migraines act up then too. But can the issues act up without it necessarily being an "episode?" I go back to discuss with my neuro on friday but i just wanted to see if anyone else went through the same thing? |
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#2 | |||
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In Remembrance
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Welcome Allison..nice to meet you.
![]() Sounds MSy to me, but could also be other diseases? Stay with us and let us know what your Doc thinks, on Friday.What you decide to do and what meds you are considering. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#3 | ||
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Senior Member
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HI Allison and welcome to our community.
You might print out what you have posted and take that with you to your appointment. I agree with Sally (once again on all points ![]() Good luck. With love, Erika |
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#4 | |||
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Member
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Hi Allison
Yes, take a list to your doc on Friday, so you don't forget anything when you see him/her. I also agree with Sal and Erika - again ![]()
__________________
Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#5 | |||
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Elder
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Welcome Allison,
Make sure to bring this list with you, as suggested by our wise person Sal. Also make sure to bring a list of questions, since I know my brain goes blank when I step in the exam room. Heat can cause a pseudoexacerbation, which isn't a flare up, just an uptick in symptoms due to an increase in body temperature. My neuro prescribed Slurpees whenever I get overheated, and I keep Icees or flavorice in the freezer, as well as a neck wrap that cools the pulse points in my neck. Keep us up to date... ![]()
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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