julie,

that is just PITIFUL. your dr definitely needs to be replaced.
i vote for getting another opinion.
make sure you get copies of your records from his office. you'll have to sign a release and may have to pay but what you read may be an eye opener. at the least it will be informative.

then get copies of your mri's.
armed with all that you can bring it with you should you want another opinion.

i'd also check with your pcp. hopefully they will take you seriously.
maybe they can get you back on your feet.

your dr doesn't sound qualified to do an LP.
errrrrr. i hate when drs tx you like that. anxiety???? poo.

I agree. Definitely not qualified to do an LP. 6 times!! I'm so sorry that happened to you.

Hope things look up for you here soon.

I am going for a 2nd opinion on Monday, I have all the records emailed to me every time I see the Dr. He's nurse is great and feels the patient have to right to see what's in there files. I just don't have time to get the MRI films before I see the new Dr.
Thank you.

When I was getting a second (third...fourth...) opinion when I was dx'd (back in 2002) I would only bring labs and films...I figured if anyone wanted another doc's notes, they would ask for them. That way, I got a "new, clean" opinion...hope that makes sense.

Funny thing is - neuros NEVER ask for notes from another doc. Is it a pride thing?

I hope you get some answers - trust yourself, you know your own body better than anyone else!

Thank you, I was hoping this Dr's notes would help because he kept writing wrong info like I says I did NOT ever have slurred speech when I HAVE. He did this a lot in just 2 visits with him.

Momx7 - Wow! hey, vent away. That's a rough ride.

I hope things calm down and you're feeling better.

I hear you... I've had docs write all kinds of wrong stuff about me, too. Makes you wonder what language they speak.



I believe what goes around comes around, and I'm sending an embarrasing itchy rash to those who treated you poorly.






Keep firing the bad docs and looking for good ones. I got fired by my pcp of 20 yrs! I was devestaed. But all for the better. The pcp I see now is worth his weight in gold (which is over $800 an ounce, lol).



Hugs and good luck - btw, I'm also in limbo.

You certainly have been thru the wringer! I hope you start to feel better and I also hope the new doc can listen and treat you well-
jane

I am so sorry things are hard for you right now. Its incredibly frustrating to be told that you are just nervous, go home, calm down, and it will be all better.

Please find a "team leader" like a great Primary care MD who can direct your care. Sit and speak to him/her honestly. Tell them, if this IS anxiety, you are willing to deal with that diagnosis, and work hard to get it under control, BUT you truly believe that other things are in play and would like some help figuring out what is going on with your body. Anxiety wont burst a vessel in your eye! No matter what, the Neuro had NO business doing an LP with NO lidocaine!!! that was just cruel. From just that interaction, it tells me that he wasnt interested in your care, or comfort, he just wanted to move you off his table. NO ONE should be treated that way. So, sit with an MD and ask them to help you make a map to figure out what is happening. Start simple, with the easy blood tests. Lyme, hep, CBC, LFT, B12 and the like. Those things can mimic MS. Move on to the MRI. My neuro tells me the MRI is MUCH more accurate than an LP as long as they use dye for the MRI. Show your MD that you are serious, and if its anxiety that you are willing to do the work to control it at the same time. Getting a partnership going will help you feel more in control and feel more heard. Being dismissed is an awful feeling.

If you meet with MDs that you feel are dimissive. FIRE THEM! Find one that hears you.

good luck and let us know how you are doing.

Good luck with your 2nd opinion. I sure do hope you find some answers soon.