As of my August MRI, I have 30+ brain lesions and can't tell you how many on the spine. I try NOT to remember and have to dig up my copy of the MRI to actually know where they are. If I remember correctly C3 was the most "avid enhancing" at the time.

Currently the only issue I have is sort-of a tingling (almost a tightness when they move)in my toes and sometimes it travels up my left foot a little. They like to tingle more when I walk for a bit but will settle down after more walking--or maybe I just get use to it?!

I actually managed to wear my high heels a couple of times and once was to my neuro visit so I consider myself blessed and doing extremely well.

Things come and go occasionally but nothing substantial right now.

I do not have a dx of ms (yet). I had an MRI done and it showed multitude of subcortical and deep white matter punctte hyperintensities in the frontal and parietal lobes bilaterally. I don't know what that means but apparently it is not the normal spot for MS. I also had a spianl tap done and it seemed to further the doc's oppinion that I do not have MS. How accurate are these tests? I am schedualed to have one more MRI to completly rule out MS. The other dx listed on report were migraine disorder, lyme's disease or sequela of microvascular angiopathy. I do not have diabetes or hypertension. My biggest complaint at the moment is intermiten blurred vision, memory loss and an over all weakness in my muscles.

13 plus lesions can be seen in the one picture the neuro printed out for me. I haven't read a report and was just told I have many lesions and have had ms for many years. many same symptoms as what I have read here. I'mwondering how the scan pictures work. Are there other lesions at different layers or locations of the brain or would they all be in this one picture. Any ideas. My doc wasn't very specific with his explanation. He just wanted to start treatment with Beta and said it is not in the beginning stages..... I don't really know what to think. And afraid to ask too many questions... :(

This may vary. On my films, some of my lesions show up on more than one picture but many do not. But that is probably because mine are relatively small compared to how far apart the slices were. The lesions are/were about 3mm, and pix were also about 3mm apart.

Most are within (if I remember right) about 3 or 4 levels, or pictures.

I asked for copies of my MRI films at the time they were done, and they were ready a few days later along with the report. I called ahead, got the films at radiology and report at Records. You can try that with your tests, too.

Comes in handy for all the doc visits - as if that stuff makes it in time for your appt, iykwim, if you don't bring it yourself.

Well, Lyme disease can be treated with antibiotics. I'm still suspicous that's what I actually have (4 known tick bites...one associated with a rash) I think I'd rather have Lyme than MS...

I have one doctor (my regular doctor) who is willing to help me investigate the Lyme further, so I need to scrape together the $600 for the test for the 12 or 13 co-infections. I'm having a private lab test me for that, my doctor said he'd draw the blood for me when I'm ready. (what a nice doctor) He's pretty cool, even if he's just humouring me.

I got copies of all my medical history from the time I started to go to the doctor's office that I go to now (records go back about 15 or 16yrs) and got myself a 3ring binder and loaded it up with my previous medical history, and then added all the tests for the MS and all the medical problems I've had since the MS symptoms showed up. Put a couple of plastic CD holders that fit in the rings of the binder and added my MRI scans.

When I went to the MS Clinic at one of the local hospitals, the nurse practitioner just LOVED my medical binder. She was so excited that I had everything organized by specialty (neurological, urologic, general medicine..) and that I had copies of my MRI's.

None of my records had ever made it to the Clinic, so she just made copies of what they needed from my stash of info, and burned copies of the MRI cd's. She said if everyone was that organized, her job would be a lot easier to do. Plus, she was able to look at my records and then ask me questions about what was going on and write my answers directly on her copy of the reports.

She was nice and had copies of whatever records the Clinic wrote up on me and had them all in a nice manila folder for me later that week. Neatly arranged in order of importance for me. I made a "MS Clinic" section of the binder, so that if I had to go to another clinic, I'd have exactly what the local MS Clinic tested me for.

This way I dont have to have all my doctors send information separately to any new doctors. I also scanned them into the computer and saved everything to a cd. Did that because the binder was getting heavy. Next time I have to have records delivered, I'm just going to mail a copy of the cd instead. Or carry one with me. Much easier than lugging the originals in the binder.

As of Oct. 2005 - 2 brain lesions and numerous c-spine lesions.

Most of my symptoms are from the waist down and vary depending on remission or relapse - L'Hermittes, vibrations/buzzing, leg weakness, pain, gait issues and internal shaking/tremors. Decreased sensation in feet, left foot being worse. Yet, my feet are hypersensitive

When first diagnosed I was numb from the waist down but rarely do I deal with numbness.

Hi Mama, I have had MS for, going on 45 years now and have never had the pleasure of reading one of my MRIs. My first one was in 1993 and my Neuro said, when asked, that it was typical MS?:rolleyes: I had another MRI with a new Neuro in, around, 2000 and he forgot to have it there, but said nothing had changed since the last one?:rolleyes:

I guess I've had typical RRMS and now SPMS, over the years. ON only once, no chronic pain, no complete paralisis...just the usual pins, pricks, bladder probs., numbness and weakness. 2 major exacerbations in 1974 and 1992, with many smaller ones along the way. Nothing outstanding or earth shattering.

In a Scooter most of the time, but can still walk a little. I haven't had PT for a long time and I think I may need it.:p I'm a lazy butt.:cool: I don't mean to sound to darn possitive, now, it's been a biotch and a long tiring trip. I think I am more acclaimated to it than having a positive attitude. :mad:

The only lesion my neurologist felt was important was the one in my right cerebellum. I don't know how big it is, but on the MRI it's the size of a fingerprint.

My radiologist report said something about T2 punctate lesions in the periventricular area, and white matter involvement of the right frontal horn. Whatever that means.

So with the cerebellum lesion, I've got:

• Right leg and arm spasticity and weakness
• Gait problems
• Bladder and etc. spasticity
• Tremor and head bob

Those are the only ones that specifically relate to the lesion...

My other symptoms are typical for MS:

• Numbness, right and left sides
• Cognitive impairment (worse when I feel worse)
• ON & nystagmus, light sensitivity
• Buzzing, tingling, cold sensations
• short-term memory loss

However, when I tell the neurologist I don't think as well as I used to, he tells me that's not possible, because I don't have a lesion in that area. :mad: Obviously he's a little behind the curve.

I don't remember the exact percentage, but the lesions visible in the brain are only about 20% of the actual damage present.

Don't remember where I read it... But damage on the left side of the brain has been correlated with more depression and emotional response. Those people with damage on the right side of the brain tend to shrug it off and put up with it, even if the damage is extensive. Guess where mine is! :wink: