NeuroTalk Support Groups - Where are you r lesions and how are they affecting you?

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- - Where are you r lesions and how are they affecting you? (https://www.neurotalk.org/multiple-sclerosis/37379-lesions-affecting.html)

Thanks, all, for the responses :)

Sorry peoples, serious hi-jack about to follow.........

Quote:

Originally Posted by SallyC (Post 199836)

............I've had MS for going on 45 years now and have never had the pleasure of reading one of my MRIs. My first one was in 1993 and my Neuro said, when asked, that it was typical MS?:rolleyes: I had another MRI with a new Neuro in, around, 2000 and he forgot to have it there, but said nothing had changed since the last one?:rolleyes:....... :

Although I have RRMS not SPMS, I was diagnosed just over 30 years ago (1977) and never had an MRI until 2001. Lets face it, when we were diagnosed (on symptoms alone) MRI's hadn't been invented then.

I'm glad you have a positive attitude Sally because I believe it keeps us sane through "life after diagnosis".

Now back to the regular thread.......

I have lesions in my brain, my neck and my lumbar spine. I'm so mixed up right now that I don't know which lesion is causing what problem!

At present I have memory loss, fatigue, unsteady gait, leg stiffness, myclonic jerks, and a "sunburn" feeling when I haven't even been out in the sun.

I get neuropathic eye pain, urinary retention & bowel problems, mood swings and did I say memory loss?

I get blurred vision, muscle weakness, footdrop, hypersensitivity to noises, and did I mention memory loss?

The list goes on.

30+ lesions on MRI dated 5/03. Scattered throughout brain. None in spine.

MS now for 20 years. Dx'ed in early 1988 without an MRI. First MRI in 1989 confirmed dx.

I don't know what I am, but I still consider myself RR. I do have some permanent problems - mostly with numbness in my legs.

I've had a dozen or so MRI's over the years. Lesions come and go, dance, swim around, flare up, disappear. First MRI - 3 lesions. Record low in 1994 - 1 lesion. record high - the 30+ in 2003.

I've also had symptoms come and go. The pain in my neck that bothered me for so many years and was one of my first symptoms went away in 2004. The pins and needles in my right hand and right side of my face only existed for the first couple of years. I had seizures 1992-1994 that the docs concluded were MS related. Vertigo and balance issues come and go. The optic neuritis that got me dx'ed hasn't come back.

Tom

I have one large one and 3 tiny ones in the brain this is from my MRI last year I am hoping I ccan talk the doc into getting me one this year on the spine as well.
My eye(loss of somesight) and my leg(tingling and cold) are effected.
I have some tingling in my right hand and on my tummy too but nothing confermed by MRI yet

lesion locations

I have 3 or 4 - all in my brain. I have weakness/tiredness in my thighs that comes and goes (mostly if I walk uphill or up stairs, even just a few stairs), weakness in my hands and wrists (they get tired holding onto the steering wheel or typing), my tongue gets tired/weak and it gets hard to talk and/or eat, yawning is difficult too. I have blurry vision for the past year it's been almost constant. I also get shooting pains in my wrists, pains in my right hip, tingling on the bottoms of my feet, and permanent numb spots here and there. Oh, and I also have fatigue problems (though it's been better since starting copaxone) and memory issues!

Thanks. Its the first time anyone has asked me for a list of all my "glitches."