Had expected to be out of limbo but as you can see ... still waiting

Last Thursday was supposed to be my much (and long) awaited, "tie up the loose ends with my neuro," appt.

It was, however, once again re-scheduled, so I still do not know whether my 5 O bands, positive VEP and BAER, repeat and documented ON, and eons of other documented time and space will be attributed to MS or to CIDP ....

All I do know, and only second hand from another Dr. who spoke to my neuro., is that he plans on giving me some type of IV treatment. Somedaaaay....over the rainbooooow....... No, I do love my neuro and his staff, they are just seriously overworked.

They did fit me in next week, rather than in the month and a half they originally were going for.

Threw me for a loop....cancer, no cancer, wierd syndromes no wierd syndromes, appt. no appt., I was down in the dumps to the umpteenth degree!!

Anyway, I've bounced back, wish I could send some positive "vibes" to you folks, but sick fur buddies, absent spouses, and Dr.'s who speak to you of anxiety need so much more. Thoughts are with you all though, for some improvements...
...and with BRAIN for the winninig entry and an accepted piece.

Missed you folks,

tante

Hi all, sorry i'm late.nothing new to report,still in limbo
But hey it could be worse.
next week i'll bring bagels.
Cheers

Just checking in.
Saw my Neuro today for the 3 month check (actually saw the NP). Not happy with the visit but won't go into details now.

Hope all is reasonably well with everybody

Ok OK, NOW I feel at home here. Thanks Greenjeans for starting this post.
Sarah, you did a great job of starting your own kind of check-in-chat on MSWorld.

So I never felt so disconnected as I did until I saw this post/forum.
To think this is where I started so many years ago on the Epilepsy forum.

Forget how winter, esp the cold plays its part in sapping my energy.

Will see the seizure/sleep study neuro in a few weeks. Nothing major there I hope. He thinks i have form of narcolepsy.

Cancelled my f/u with the MS neuro. Why? IT just costs me money in co-pays. I also am seeing my new Rheumy... too many dang doctors.

So.. my goal is to eliminate docs as much as I possibly can.

Good luck in publishing your writings Brain/Cathy!

Healing love and warmth..

Jan