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#21 | ||
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Member
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Chris is the same way, heat just wipes him out and he has learned that. Sometimes he will still take a hot shower and then sit there and cool off before he gets out so that he doesn't fall to the floor.
I would assume since MS effects everyone different that the heat would also be different for everyone.
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Son with MS |
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"Thanks for this!" says: | Friend2U (02-03-2008) |
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#22 | |||
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Senior Member
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Quote:
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11). . DX with Fibromyalgia, 1998 DX with MCS (Multiple Chemical Sensitivity), June 2008 DX with Food Allergies, wheat, sesame, fresh pineapple . |
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#23 | |||
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Grand Magnate
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Heat turns me into a ragdoll, and I get very weak. So standing in a hot shower is out for me. I still take hot baths on occassion to help with some of my muscle pain, but I only let myself stay for about 15 minutes and it's usually right before bed so I don't have to worry about moving around too much. I also never do this when I'm home alone, just in case.
When the cons get worse than the pros of doing this, I will definitely stop. ***knocks on wood*** Haven't gotten to that point yet, but I know it may come at some time.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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"Thanks for this!" says: | Friend2U (02-01-2008) |
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#24 | |||
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Elder
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sometimes I LOVE a hot bath!
![]() Sometimes a hot bath makes me feel pretty sick ![]() Some hot days dont bug me, some make me limp like a noodle.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | Friend2U (02-03-2008) |
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#25 | |||
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Junior Member
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Hot Showers are the highlight of my day, can't get started without one and the hotter the better.....but they definately drain me. I just plan ahead and know that when I get out I will have to just sit for 15-20 minutes while I re-energize. Hopefully it doesn't get any worse - I would hate to have to give them up!!
Extreme cold - yep that too! Not always, but frequently, when I first go outside and it is cold - I do the Frankenstein walk. I have to stop and really stretch my muscles out to get them kick started.
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. Carolyn |
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"Thanks for this!" says: | Friend2U (02-03-2008) |
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#26 | |||
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Senior Member
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When I am FINE totally....then I can bath hot! However if there are MS things happening, forget the hot bath!
I too had those stars and never told anyone!!! (I'm a classic keep strange sx to myself person!!! BUT I'm learning to behave and call the doc!) |
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"Thanks for this!" says: | Friend2U (02-03-2008) |
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#27 | ||
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Guest
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Because is excerbats your sx.
I cant take hot baths,I cant be in the heat,And I can not drink my coffee in the summer months. Which sux big time. I drink NOS in the summer months,and if its cold out I can chance it and maybe drink one cup of coffee. |
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"Thanks for this!" says: | Friend2U (02-03-2008) |
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#28 | |||
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Elder
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Here is some information about Heat Intolerance and MS from the National MS Society that you might find helpful as well.
http://www.nationalmssociety.org/sit...ourcebook_heat Many people with MS experience a temporary worsening of their symptoms when the weather is very hot or humid or they run a fever, sunbathe, get overheated from exercise, or take very hot showers or baths.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | Friend2U (02-03-2008) |
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#29 | ||
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Member
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I have been reading this thread and I have a question about the eye thing you were talking about. I get those sparkles, I always thought that was a sign that my b12 was low. Has anyone ever seen (I know this sounds weird) like and x-ray type of picture of an eye ball when you close your eye?? I don't know how to explain this sorry
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"Thanks for this!" says: | Friend2U (02-03-2008) |
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#30 | |||
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Member
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I'm VERY heat intolerant...no hot baths or showers. If outside temps are above 70 degrees, I am a virtual hermit. When I get overheated my legs feel like walking on wet noodles, my eyes get blurry and cog fog sets in and I feel like all the blood has been drained from my body because I am so weak.
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God never promised a smooth journey, just a safe landing! |
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"Thanks for this!" says: | Friend2U (02-03-2008) |
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