I get Uhthoff's phenomenon in my eyes sometimes when I take too hot of a shower, but not every time. (not sure why that is) but, it hasnt bothered me so much that I've stopped taking hot showers yet.

My neuro said as long as I feel fine after taking a hot shower that it's ok to keep taking them. The vision problems (so far in one eye) are annoying, but it goes away within a half hour to an hour, so it hasnt been too bothersome for me yet.

The vision problem is the only one that I've had after taking a hot shower...if the heat from the shower starts doing other wacky MS stuff to me, then I might turn the temperature down a bit.

i'm very heat intolerant.

when a person with MS gets too hot, whether from a bath or from heat in the summer, nerve impulses slow down in the body. this can lead to extreme weakness and fatigue. it can cause a pseudo flare. meaning, when the body gets back to a normal temp, say from air conditioning, the sx's (symptoms) go away.

it's said that 1/2 to 1 degree can cause sx's to flare.
i can't take hot showers anymore. if i do i need to sit or go to bed afterwards til i recover.

Never was much on baths, tubs are too short. Showers! Now cool, like cold? Just can`t handle the warm water.

PPMS no flares or such, just a degree or two and I am weaker, more problems getting the legs to move. Seats in my shower, just can`t stand long enough to take one safely.

Uhthoff's symptom that's what happened to me when I had my first flare-up and so far only flare-up with Optic Neurtis I would take a hot bath and then suddenly my right eye got so bad I could hardly see out of it.But about half hour to an hour after I got out of the tub my eyesight returned to normal because my body temp came down to normal. At that time I didn't know I had ON and could't figure it out made a appt with a opthmologist and bingo you got Optic Neurtis and probably MS. That day was the shock of my life.

Kristi,
What a sudden & awful way for you to find out. I don't have this as an issue. But I had just not heard of it. Thank you.

there's no certain temperature.
see what's best for you as an individual.
if you're symptomatic try to decrease the temp of the water a bit.
not cold but not hot.

everyone is different.
some don't react to the heat but a lot of us do.
MS is very individualized.

....what everyone else said Erin, but I'm a bit different~!

My symptoms seem to survive in the heat, but they deteriorate in severe cold!

I've noticed problems in extreme cold. We've been having -15 and -20 degree temps here. I'll go outside and my feet will suddenly feel like someone dropped them in a bucket of water and I suddenly had giant ice cubes surrounding my shoes. (ice shoes) and I had to walk slower.

But, it seems like my sensitivity seems to fluctuate, heat doesnt always bother me, and cold doesnt always bother me.

I guess the MS trolls in my body cant decide on what temperature is the magic number for making my body go all wonky.

I can relate to that. My feet become clumps of concrete, and my legs become like Frankenstein's.

There are times when I just can't seem to move about easily, but when we lived in the hotter states, I did OK. For me it's extreme cold that sets me off the most.

MS is a very unpredctable disease, and what works for one person does not necessarily work for the next. It's just a case of take it slowly, and work out what works for you, and what doesn't.

Cheers, Anne

Wow, that's cold. I just have to be below 60 and my body hurts really bad and limbs don't want to work well. But the heat gets me also, I go numb, brain doesn't work well (I feel like I'm dreaming).