My eyes will sometimes get blurry vison after a shower. The right eye gets blurred vision and (hard to explain) what looks like little white dots that arent letting some of the visual information thru to my brain.

The left eye (the one I've actually had a diagnosed case of ON in) will just feel...strange...like I cant focus on anything very well, but I dont really get any weird feelings like the eye is missing some of the visual information.

Kristi,
What a sudden & awful way for you to find out. I don't have this as an issue. But I had just not heard of it. Thank you.

Erin,
Not sure what goes on with my eye. I have a scar on my central vision of right eye. Sometimes when I have burning on that side of my face and head I see sparklies (for lack of better word). These days I'm always seeing tiny gray spots all around that old scar. My neuro is sending me to an opthamologist. I know he is concerned about reactivating the hysto. Not sure what is up. Curious as to it is something similar to what you experience.

there's no certain temperature.
see what's best for you as an individual.
if you're symptomatic try to decrease the temp of the water a bit.
not cold but not hot.

everyone is different.
some don't react to the heat but a lot of us do.
MS is very individualized.

....what everyone else said Erin, but I'm a bit different~!

My symptoms seem to survive in the heat, but they deteriorate in severe cold!

I had the sparklies (they were gold) for about 10 months after the ON started. I would see them mostly in a dark room. But, I would also see them if I had just come inside from being outside in bright sun, or after being outside with a lot of snow on the ground.

I could also see them when my eyes were closed.

I havent had the sparklies since sometime last summer. It was kind of pretty in a dark room, but it was still disturbing to me, so I'm glad they went away.

I've noticed problems in extreme cold. We've been having -15 and -20 degree temps here. I'll go outside and my feet will suddenly feel like someone dropped them in a bucket of water and I suddenly had giant ice cubes surrounding my shoes. (ice shoes) and I had to walk slower.

But, it seems like my sensitivity seems to fluctuate, heat doesnt always bother me, and cold doesnt always bother me.

I guess the MS trolls in my body cant decide on what temperature is the magic number for making my body go all wonky.

I can relate to that. My feet become clumps of concrete, and my legs become like Frankenstein's.

There are times when I just can't seem to move about easily, but when we lived in the hotter states, I did OK. For me it's extreme cold that sets me off the most.

MS is a very unpredctable disease, and what works for one person does not necessarily work for the next. It's just a case of take it slowly, and work out what works for you, and what doesn't.

Cheers, Anne

Friend2U,

This will give you a little bit of information about heat and MS -
http://www.nationalmssociety.org/sit...ourcebook_heat

Heat doesn't affect everyone negatively but heat intolerance is common.

Heat has been known to cause a pseudoexacerbation (temporary worsening of MS symptoms which go away once the trigger (heat, fever, infection goes away).

However, heat has triggered exacerbations for me, not the pseudo kind but the real deal. I have a very healthy respect for heat and especially summertime.

its mid summer here with temps in the mid to high 90's on a daily basis, i try to avoid going out in the hottest part of the day as within a very short time my vision deteriorates, if i can't get out of the heat it is only a short time before i barely have the energy to sit up! I used to love the hot weather and long hot showers- now i dread the hot weather! I use an electric wheelchair and have found that i can get some relief if i use a couple of freezer bricks, the type you use in picnic coolers- i put them between my back and the backrest of my chair- i am thinking of investing in a cooling vest