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06-30-2008, 05:52 PM
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#461 | |||
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Magnate
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The price of Tysabri is going up.
As of June 28, 2008: The new price is $2295.16 per vial for a yearly price of $29,837.08. This is the wholesale price. Previous wholesale price was $2228.31 per vial.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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07-01-2008, 04:06 PM
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#462 | |||
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Magnate
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__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | ewizabeth (07-06-2008), Natalie8 (07-06-2008), RedPenguins (07-01-2008), SallyC (07-01-2008), Victor H (07-05-2008) |
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07-03-2008, 10:46 AM
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#463 | |||
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Member
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Dr. Weiss is my neurologist!!!! And the Vail Daily is the sister paper to the one I write regularly for up here in Summit CO!!!!!
Actually, I also write sometimes for the Vail Daily too... And yes, if all goes well with my new insurance I'm to start Tysabri with Dr. Weiss this summer. He and my PCP up here are both big advocates of the drug and both offices give the infusions, which is very helpful to those of us up here in the Colorado High Country who have MS. Dr. Weiss is a wonderful, wonderful doctor. I truly believe he saved my life when he diagnosed me back in March, after I had had 20 years of illness with Lupus and Crohn's--and then, increased and worsening central nervous system involvement... Great article about a great doc. don't know how I missed this one, seeing that it's from our sister paper. I'll have to mention this "cog fog" to my editor when I call in! Thanks for sharing! 
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07-05-2008, 11:27 PM
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#464 | ||
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Senior Member
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Quote:
Keep us posted. -Vic |
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| "Thanks for this!" says: | Natalie8 (07-06-2008) |
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07-06-2008, 12:23 PM
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#465 | |||
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Member
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Quote:
__________________
On Tysabri and love it. . |
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07-06-2008, 12:30 PM
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#466 | |||
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In Remembrance
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Quote:
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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| "Thanks for this!" says: | Natalie8 (07-06-2008) |
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07-07-2008, 05:05 PM
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#467 | |||
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Magnate
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Natalie,
Hope all went well today! Looking forward to your report! 
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | Natalie8 (07-07-2008) |
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07-07-2008, 08:05 PM
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#468 | |||
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Member
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oh darn! I wrote something and it got erased. So let me try again.
I made it through the infusion with very few problems. Whoohoo!  I celebrated with some Texas barbecue. The nurse was rough and made the IV hurt. A young girl sitting next to me getting Tysabri gave him a lecture on not forgetting to let the alcohol dry before he stuck me (she says it hurts) and not helping the "new patient" to relax. I'm feeling tired, a bit dizzy, and spacey like I'm on heavy drugs (not sure if this is the Tysbabri or the benadryl??) But other than that no obvious side effects. I will be going to bed early...glad the day is almost over.
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On Tysabri and love it. . |
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07-11-2008, 12:06 AM
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#469 | |||
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Member
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Just wanted to share some information I discovered for anyone who is nervous about starting Ty and worrying about PML. (I posted this on another thread on Stumble Inn). I had my first infusion a few days ago. I am still worrying about the risk of being on this drug but what I have come to discover is that for those who cannot tolerate interferons or copaxone a lot of the alternatives have risks too. For example, I just found out that 17 people have gotten PML on the drug Cellcept. That drug is being prescribed off label for MS. It is being used in a drug study at my MS clinic too!! So Ty. isn't looking so bad compared to Cellcept.
Rituxan (a chemo drug) that is prescribed for MS off label has had a few cases of PML too (people who had lupus). So the fear mongering about Ty. could easily be directed at these other drugs too. My sense is that because the PML reports came out when Ty. was SO new that it got a lot of press. And the best thing about Ty. is that the side effects are WAY more tolerable than something like Cellcept or Rituxan. In fact, a lot of people don't even have any side effects. I am super sensitive to meds. and I noticed nothing during or after the first infusion except for some mild fatigue. About cellcept see http://www.medscape.com/viewarticle/576907
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On Tysabri and love it. . |
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Tysabri tidbit
Fancy schmancy. The infusion nurse is Jay. I get pre-medicated with benadryl and can bring my own blanket and pillow.
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