Vic,
I am so sorry to hear this. You have been a wealth of information for a LOT of people, and your charts and graphs made your journey easy to understand and follow.

Good Luck on your journey with Rebif! I don't have any tips or pointers, having never had the pleasure of the Rebif. All I can say is do what I did with Copaxone. Every time I did a shot, I did something nice for me!

(y'all thought i was gonna say i did a shot of something, huh? )

Sorry, Vic. There's no way to get help with the costs, eh?

I thought people had to try the CRABs first before going to Tysabri? I realized they were putting "aggressive activity" patients straight on Tysabri now, but I thought everyone else was supposed to use Tysabri only if they couldn't tolerate the CRABs?

Cherie

Hi Vic,

Wow, I'm so sorry to hear this. Drat! Why does medication have to cost so damn much??!! It's just not fair. On the other hand, $51 a month ain't bad! I'm sure the extra money in your pocket will be nice.

You were an inspiration on the Tysabri thread -- I hope you still check back with us here. I feel like we are losing part of the crew.

Good luck with the Rebif.

Natalie

Cherie,

That used to be the case, but the trend has changed and alot of people are starting with Tysabri.

-Vic



Natalie,

I feel really good about saving money. This will help a bunch. And, I will always check in to see how everyone is doing.

-Vic

Sometimes you just have to laugh...

The plan to use Rebif required me, like all of you, to read everything about the medication (much as you all have about Tysabri).

There was a small line in the "warning" section of the Rebif paperwork that indicated that a potential adverse reaction could occur becuase I had a seizure 17 years ago (and have been taking a minimal dose of Dilantin every day just in case). Now, that was a long time ago...but it is in my medical records.

So, I decided to check my Life Insurance Policy to see if taking contradicting medications would void the policy. And of course, it would void the policy.

Some things just make you sit back and laugh,..., and this is definately one of those things.

Time to read more on the other available medications.

The GREAT news is that I am now going to also save the $51/month for Rebif and my Life Insurance policy will remain intact for Tania!

LOL

-Vic

Oh criminy Vic. What next??? How about Copaxone, would that be an option?

It could be a good choice, Wiz.

Thanks.

-Vic

Vic,

I still check in on this thread occasionally, and was really sad and frustrated for you that you are going through this. I can sort of relate although my problems were not with insurance -- just the meds.

I'll be starting Tysabri on Monday afternoon. I have a friend driving me and who will work on my 5 week averages while I'm infusing.

I am suffering from a horrendous depression at the moment and working as a teacher is really showing me my cognitive deficits frequently. I've been feeling lousy since May so I am hoping that Ty and an increase in my AD and Xanax will help me to feel better soon.

Thanks for this thread. I like being able to come and learn new stuff.

Weebs

Hi Weebs!

Welcome to Tysabri!

Sorry to hear the depression is so bad. I'm glad to hear you are working with your docs on this issue.

As for the cognitive stuff, a lot of us can relate to that issue!

Please let us know how it goes Monday, and good luck!