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12-22-2008, 02:58 PM
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#791 | |||
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Elder
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Happy Birthday Natalie!!
  Way to go on the good MRI's!!
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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12-22-2008, 03:20 PM
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#792 | |||
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Member
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Thanks Wiz! B-day is 10 days and counting. This will be a better holiday season than last year. A year ago I was at the Mayo Clinic the day after Christmas getting the MS confirmation news and being told my brain looked like swiss cheese! Cheers to no additional holes this year!
 
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On Tysabri and love it. . |
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12-22-2008, 10:30 PM
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#793 | |||
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Magnate
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Natalie!
During this Holy Season, it's WONDERFUL to hear your un-holey news!  Please have fun in Cali and forget the fact that you have MS and enjoy the holiday!!! 
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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12-23-2008, 10:28 AM
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#794 | |||
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Senior Member
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Hi everybody! Well, I have some not so great news.
 . Although my mri latest mri is stable, I've decided to stop Ty. I've been getting worsening headaches (disabling pain, I guess equivalent to a migraine) immediately after each infusion even though I take the Tylenol and Claritin before. They last for more than a day. I also get bodyaches, chills, and a low-grade fever. After discussing this with my neuro and my dh, I've decided to stop after my 10th infusion. I hope I'm making the right decision. ARGH!! I'm just so pssd off that these dam drugs keep failing me in one way or another! Thanks for listening.
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Multiple Sclerosis-Dx May 2007 . |
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12-23-2008, 10:38 AM
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#795 | |||
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Elder
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I'm sorry Joelle.
Why does the treatment so often have to be as bad or worse than the disease? I hope you'll find a treatment that will be tolerable for you.
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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| "Thanks for this!" says: | Jodylee (12-23-2008), Natalie8 (12-23-2008), Riverwild (12-23-2008), SallyC (12-23-2008), tovaxin_lab_rat (12-23-2008) |
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12-23-2008, 01:20 PM
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#796 | |||
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Magnate
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Ahh Joelle,
I am so very sorry to hear this. It sucks when you expect that a drug will help and it doesn't work or the side effects are worse than the affliction that you are taking the drug for! Please know that you are in my thoughts and prayers. Please keep in touch and let us know how things are going for you! I've been thinking of you lately and I am glad to see you post. The good news is that your MRI showed stabilization. That in itself is a positive thing. I wish you joy and peace this holiday season, my friend.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | ewizabeth (12-23-2008), Jodylee (12-23-2008), Natalie8 (12-23-2008), SallyC (12-23-2008), tovaxin_lab_rat (12-23-2008) |
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12-23-2008, 03:03 PM
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#797 | |||
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Grand Magnate
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Sorry to hear that this hasn't worked out for you, Joellelee.
Have you tried anything else yet? Did you have (worse or just as bad) side-effects from them as well? Perhaps T is actually the 'least of all evils' ...  I have a terrible time with many meds too, so I know your predicament. You have had a rough year, and hope 2009 is better for you. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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12-23-2008, 03:11 PM
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#798 | |||
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Senior Member
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Quote:
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__________________
Multiple Sclerosis-Dx May 2007 . |
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| "Thanks for this!" says: | ewizabeth (12-23-2008), Kitty (12-23-2008), lady_express_44 (12-24-2008), Riverwild (12-23-2008), SallyC (12-23-2008), tovaxin_lab_rat (12-23-2008) |
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12-23-2008, 08:46 PM
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#799 | |||
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Grand Magnate
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Joelle,
I am sorry to hear about ty, but the news about your mri is good. I understand how you feel. |
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| "Thanks for this!" says: | ewizabeth (12-23-2008), Jodylee (12-27-2008), Natalie8 (12-24-2008), Riverwild (12-23-2008), tovaxin_lab_rat (12-23-2008) |
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12-24-2008, 12:41 AM
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#800 | |||
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Member
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Hi Joelle, So sorry to hear about your problems with Tysabri. I get a fever from the Ty. sometimes too. But I understand your frustration. I had a tough go-around with every other drug--it's upsetting when you feel like your body won't cooperate. Glad to hear the MRI is positive news.
__________________
On Tysabri and love it. . |
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