I get my 10th infusion a week from next Monday. I'm glad you started this thread because I was going to ask a question of some of the Tysabri veterans.

My next infusion will be nearly five weeks instead of my normal four because they have such a busy schedule at my doctor's office. Has anybody noticed feeling worse or more tired when they have it a little later than normal? I wish I were having it next week instead, I feel like I need my Tysab-tini soon.

I haven't missed by more than a day, so I can't help you on the length of time. I get the feeling I need more sometimes, usually around middle of the third week. I'm not sure if it's because I am doing more or what, but I would hate to miss an infusion or be late!

Hi Wiz, this is alias lindaincolorado Twice I have gone 5 weeks and it was rough. The fourth week I start to run down, so the 5th was not good. My daughter told me to NEVER do this again
Good luck,
Linda

Hi Linda!

It will be five weeks, two days on Monday. Last night DH thought I was having PMS, though I'm past that stage in life. I need my Tysabri fix, Monday will be infusion #18 for me... (right RW? )

Boy, if they kept moving me back like that I would be doing some growling to both my doc and the infusion center! You should point out that Tysabri is designed to be infused every 28 days...repeatedly... if it's your infusion place that is doing this and not you or your doctor due to something going on with YOU! It's a different story if it is your choice. They are making a LOT of money off of you/your insurance. It's NOT ok to be scheduled at the convenience of the infusion center!

I have never been moved back even a day since the first infusion when they didn't get the vial in time. I've been moved up a day or two for both my convenience or for theirs when the infusion center and the doc and I were in agreement, but never back. I also schedule my appointments at the same time/same day every month for 6-7 months at a time.

Is it #18??? Congrats to you, partner!