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Old 02-04-2008, 01:45 AM #9
JJLL411 JJLL411 is offline
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Join Date: Feb 2008
Posts: 21
15 yr Member
JJLL411 JJLL411 is offline
Junior Member
 
Join Date: Feb 2008
Posts: 21
15 yr Member
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Quote:
Originally Posted by Riverwild View Post
Hi JJ and welcome to NeuroTalk!

The drug monograph lists information for antibodies under "Adverse reactions- Immunogenicity. See pages 9 and 10.

Hope that helps you!

I had my 10th infusion last week. I haven't been tested for antibodies, but I haven't had any reactions to suggest that they have developed either.

How is your fiancee doing with Tysabri so far?


You mean my 'blushing bride'? (First wedding anniversary is Valentine's Day !)

Thanks for the feedback - you provided the answer to my question.

LL (Love of my Life) never displayed any 'side effects' after one year on Betaserone - but blood tests last year indicated that her body had developed neutralizing antibodies to Interferon. Betaserone wasn't slowing progression of the disease because of her antibodies to Interferon and that's why her neurologist recommended that she switch to Copaxone or Tysabri. He encouraged Tysabri because of clinical evidence indicating that Tysabri was more effective than Copaxone in moderating/controlling progression - despite the risks.

My new bride is doing well with Tysabri. She has minor side effects such as "flushing cheeks" and "severe fatigue" on the day of infusion - but she seems to (otherwise) tolerate the treatment well. She doesn't seem to recognize any significant difference since starting the treatment, but I see some improvement in her energy level. Time will tell.

We appreciate the feedback from all of you in this group. We learn more from groups like this one and from other groups than we do from all the medical journals and the doctors. Your personal experiences are helpful to us.

Health Talk (dot) com has another MS/Tysabri group that is helpful.

Until we find a cure, we hope that therapies like Tysabri will help us "stay the course."

Thanks again.
JJ
JJLL411 is offline  
"Thanks for this!" says:
Riverwild (02-04-2008)
 


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