Did any of you currently on Tysabri have difficulty starting the process? Just trying to assess how much of a battle I may be in store for ahead of me. I'm hoping it is smooth sailing. So far is has been easy. Blue Shield rapidly approved the MRI (same day) and the home health nurse for the IVSM and the Copaxone right away. With the tysabri I have no idea what I might be up against....not that it's gonna stop me. I imagine my roots will come out - I may have been out of NY for many years...but you know what they say - you can take the girl out NY - but the ***** never leaves her. LOL - kidding - but when it comes to my health - I will have no qualms about crossing the line between between being assertive and aggressive to get the treatment I need. In the meantime - the FDA best not be thinking bout pulling Tysabri from the market. I will be crushed.

Also, how long did it take to get started from when you told the doctor you wanted to start to when you actually did start?

thanks for the info,

~Keri

Hi Keri!

It took about a month from start to finish for me. Some people get started more quickly. Since C isn't working for you and you can't take interferons, I don't think you should have any problems.

Talk to your neuro asap to get the ball rolling.

I have high hopes for Ty. My first infusion is tomorrow, the 13th, I really think it might be great for me.

I'm a northerner and have a quite a large mouth when I need to. I've been using it alot lately LOL!

Hi Keri,

Getting treatment with Tysabri is a whole lot easier now than it used to be. Dr. prescribes Tysabri, you sign paperwork, paperwork is faxed to MSActiveSource, they call you and the ball is rolling.

It took a month for me, it may be faster now. ( that's not counting the wait from March 2005 to May 2007 when I was finally infused!!)

Good Luck and let us know how it goes!!!

( Don't EVEN mention FDA and pull in the same sentence!! There would be a whole LOT of crushing going on and it would be the doors at the FDA by Tysabri users!!!)

I did not have a MRI before mine. Last MRI was in the spring.

Riverwild -

OMG - that is a LONG time to get there - but I know all the probs in the past with Tysabri... :sigh:


Please, ever since I read the posts about the recent developments, I've been wondering, if they pull it here, will they pull it in other countries, and could I get treatment out of the states? Hmmm. I'm going batty. This would be MY dumb luck! But let's not go there!!

I will let you know how it goes. I'm prepared to get on this drug and SOON!!

~Keri