Will be thinking about you tomorrow Joelle and also keeping your Mom in my prayers. You'll be fine tomorrow and with your Mom in no time!

Sending you good thoughts and vibes,

Joelle, good luck with everything! Even though I had my appoitntment in the neuro's office they had all of the necessary med's available if they needed it -- benadryl, epi pen, crash cart. Of course my neuro's office is connected to the hopsital by a bridge.

I am also hoping that everything turns out well for your mother.

Good Luck to you joellelee and prayers are going out for Mom!

All my infusions are done in the teaching hospital my neuro works out of becacuse that is where he infuses all his patients.

It seems smart to me to do your next and maybe all future infusions in a hospital because of your reaction...and probably to pre-medicate with benadryl. But I am praying that this is just a one time event for you and all your future infusions are boring but effective.

I'm home! No ill effects from Tysabri! It's only been 3 hours since my infusion but I feel fine.

No rash, hives, headache, anything!


No news about my mom yet, though. The biopsy results aren't back yet. I guess one more day of ignorance isn't that bad.

Joellelee!

Thanks for checking in! I was thinking about you! I am so glad to hear everything went well with your infusion!!

I know how hard it is to wait for news about a parent. I sat through it all with my Dad, biopsy, diagnosis, surgery, etc.

Please take the time to rest and build up you. You've got a hard road ahead. I pray that her tests come out ok.

I am here celebrating YOUR good news today!

Let us know when you hear, ok?

Hooray for your infusion!!! I hope you'll get good news about your Mom. It's so hard to wait!

Wonderful News!!!!!!!!!!!

There was a message on our machine when I got home from work tonight that I've been approved to start Tysabri by our insurance company.

It was too late for me to schedule the appointment as the MS Centre where I go was already on their answering service. But, I'm going to schedule my first appointment tomorrow.

I do have a question. I was in the original Antegren studies, and when I went for my infusions, I was typically there for almost a half of a day. How long should I expect to be there for just a regular infusion? I've filled out all of the paperwork already, had all of the lab work, and my MRI, so all I need to do is register at the infusion centre and get the infusion. I'm looking for a rough estimate.

Thank you!
Chris

Yay Chrappy!

Glad your insurance company is coming through for you!

Three hours seems to be the average infusion time. About an hour for setup and questions, BP, temp, start IV with saline, call the pharmacist, they mix it and bring it down. Another hour to infuse, and an hour of observation after infusion to watch for reactions.

Let us know when you start!!

Thank you! I'm hoping to start sometime next week if they have time. I go to an MS Centre so they have their own infusion room. I'm hoping they will let me call them by cell when we're 10 minutes or so away so they can get everything mixed up rather than having to wait until I get there. They wouldn't mix it up until I was actually in the infusion centre the last time. I suppose they have to worry about people not showing up.

I'm so excited. I'm ready for a party!