Tysabri Information & Check In

Riverwild · 03-14-2008, 04:25 AM

Quote:

Originally Posted by joellelee2000

I had my second Ty infusion yesterday. No reactions, but for some reason my neuro is now having everyone takeTylenol and Claritin before their infusions. I'm wondering if more of his patients are having reactions. Before my first dose, I asked him if I should premedicate and he said no. He also said then that too few of his Ty users had reactions to merit premedication. I'll ask him about this at my next visit. It seems a bit odd to me.

Thanks for the update Joelle! Been thinking about you!

Quote:

Originally Posted by Av8rgirl

Just an FYI for those of you who were not around for the initial release of Ty, premedicating with tylenol and benadryl was part of the original protocol. I am wondering since it was on the market for such a short time (3 months), they didn't see any reactions. Now that's it been on the market for a longer period, they've seen these reactions and are going back to the original protocol. Just my thoughts on this...

Glad you are doing better Joelle and have had your second infusion.

Good post and good reminder! I had forgotten about this and now when I say it I will remember that it WAS in place at the beginning!

Quote:

Originally Posted by sheena

I'm in with my infusion appointment set at last. I go in 3-18 at 10am for my first. I thought it would be another 2-3 weeks b4 infusion, but my main nuero had a fit at the infusion neuro center and I'm in Tues. Now, I just pray nothing goes wrong and that ty works for me. I'll keep you updated on how things go.

~Sheena~

Happy to hear you finally got your infusion date Sheena! Please let us know how it goes!

Keri!,

This has gone beyond anything I could take. I would be screaming at everyone on the phone too! I hope you know we did what we could to bring you to the attention to the proper people. As Av8rgirl said- USE THOSE NUMBERS!

I did get a reply saying your info was being forwarded to someone who could help you, but obviously it hasn't worked if you haven't heard from them!

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