I go for my first infusion on the 30th, and I was just wondering from everyone. How many patients are in your clinic. For myself I am going to be the twelvth patient.

Glad to hear that you are scheduled for your first infusion!

I can't speak for anyone else. I go to a 25 bed hospital that has an
infusion center. I was the only one for my first 7 infusions.
Now there are two of us!

I go to a standard Neuro office. They have 70 on TY. They also give infusions for headaches... 3 large comfy chairs in a very small room. The others came and went as theirs was for 30 min - mine 2hrs. No problem at all. Nice chat or read/sleep time. Very relaxed.

I know my neuro has 16 patients on Ty, and there are other neuros in my town. He said most are going to the infusion center I am going to, not the hospital that is the other place that does them.

They only do Ty three days a week, M-W-F, so I'm limited to those three days. I did Wednesday the first time. Everything going well so far!

Anyone ever had the lower leg, ankle, and foot swelling as a TY side? I've had it my left leg-foot (mod bad) and rt leg-foot (not very bad) since my 2nd day after infusion. It started to go down a little yest, I think b/c I am due for next infusion on 15th. Just hoping it does not get any or much worse with next. Heck, if it does I guess I'll wear bedroom shoes LOL.

BTW-I think my 3rd round of antibiotics is kicking in. I'm very hopeful I can make the 15th infusion date. I've been this ill b4 and for longer then this.

I am remain and will remain very pro TY! This drug works on my MS. As I come closer to my infusion date, I see what it has done for me. I can see exactly where it stoped my sx and exactly where they came back a few days ago (as expected). My sx now are not as bad as b4, but new. It's hit my eyes. mouth... If it were not for TY, I have no doubt these new ones would have hit harder then now weeks ago and remained. I do belive we need it every 3 to 3.5 weeks, but that has yet to be approved.

I want to thank everyone for hanging in with me, giving me their best advise and support. I know I have been hard on you guys. I've just been sick as heck and scard. Please keep your fingers crossed for the 15th - maybe I had better ask you for a double cross. Everything is going to be fine.

~Sheena~