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Old 04-15-2008, 01:46 AM #11
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Riverwild Riverwild is offline
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by celieb View Post
Just wondering why many of you ended up on Ty?

Copaxone didn't work for me with side effects, history of depression rules out A and B so I think my specialist will say Ty (that's what my local neuro thinks, but, wants the hopkins okay)

Since stopping copax I had a "honeymoon " period and then went downhill. I'm having a relapse and am doing the best I can.

How long does it take for Ty to "work"

Thanks, Carrie
Hi Carrie!

I started noticing small improvements after my second infusion. I kept my mouth shut in case it was all just subjective hope.

After each infusion I would notice the small things that just kept improving, sometimes just because something that used to bug me would be gone and I would realize that it hadn't bothered me in a few weeks.

At the 6 month mark I did my own assessment, had a neuro appt., MRI and vision screening. At that point I had the clinical proof to go with what I was feeling. I will have my 13th infusion on April 24th. I have another neuro appt and MRI coming up before my one year anniversary in May.

I cannot WAIT to see the results of the upcoming MRI. I expect more improvement!

The 6 month MRI showed no new lesions, no enhancing lesions and the largest lesions( 12-14 cm.) either reduced in size or gone. My vision screen showed no damage to my optic nerve, it was healthy and pink, my eyes were back under MY control and my 2003 prescription for glasses for nearsightedness was back in effect. No nystagmus or oscillopia was noted as was in previous exams. No more vertigo, no more eye getting stuck in position when I looked left. My quality of life has improved. My fatigue has lessened. My stiffness and spasticity continues to be a problem, but nowhere near as bad as it was.

I was scheduled for my first infusion when Tysabri was withdrawn from the market in 2005. I hadn't been on any other MS therapy since diagnosis in 9/2004. I went on Copaxone while waiting for Tysabri to be returned to market. It did nothing for me. I had serial relapses and ongoing problems.

I got on Tysabri as soon as I could after it was returned. So far, so good from that point on! It may not work for everyone but it worked for me!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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