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Old 04-28-2008, 03:55 PM #11
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by CBo79 View Post
Hi my name is Crystal, I just introduced myself in the Newby forum. I have been dx'd since Feb 2005. I have had HORRIBLE MRI's in the past so they started me on Ty in June 2007, I thought it was my miracle drug and was doing awesome on it, until Feb 2008. I have had extreme pain in my legs, numbness in arms/hands/legs, spasticity (this is new never had it before), memory loss, vertigo, insomnia, and depression.

Am I the only one who has relapsed while being on Ty? I go see a new neuro on Wed and I hope he can spread some light.

I also quit working in March and am filing for LTD and SSDI. UGH! This seems like a great board!
Hi Crystal and welcome!!

I'm sorry to hear you are having a relapse. It must be even harder to deal with after such a long period without any!

Despite my success with Tysabri, I still keep in mind that relapses do occur on every DMD, including Tysabri. You are not the only one who has had a relapse while on Tysabri. The reports are usually that the relapses are of a shorter duration, but not always, and it sounds like you are in the "not always" category.

Having an MRI may help you and your neuro decide to where to go from here. I hope that whatever you decide that you get some relief soon. Please update and let us know how you are doing!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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