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#411 | |||
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Magnate
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__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | Jodylee (06-06-2008) |
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#412 | |||
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Senior Member
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Multiple Sclerosis-Dx May 2007 . |
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"Thanks for this!" says: | Riverwild (06-06-2008) |
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#413 | ||
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Senior Member
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A short update:
Left leg is much weaker, and "wall-walking" is a common practice now. Why? It could be because I am starting another UTI, which make the most sense. Solution: Pounds and pounds of Cipro may do the trick! It usually does. ![]() I am going to see my neuro-team next Thursday to keep them informed. I bet by then the UTI will be over, my left leg will be better, and "wall-walking" will have decrease significantly. It usualy does. -Vic |
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#414 | |||
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Senior Member
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So sorry about your legs Vic. I haven't had a uti (lucky me
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__________________
Multiple Sclerosis-Dx May 2007 . |
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"Thanks for this!" says: | Victor H (06-13-2008) |
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#415 | |||
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Magnate
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No UTIs here either, Vic.
I've never had a UTI, but it sounds VERY unpleasant! I hope your take on things is correct ( as it usually is!) and that things resolve after the Cipro! Let us know how it goes! We're pulling for you! ![]()
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | Victor H (06-13-2008) |
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#416 | |||
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Elder
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Sorry about the UTI Vic. I've had them a few times in the past and they sure aren't any fun. The last time I had one was when I was tapering off of high dose steroids with prednisone pills. When I get an infection, walking is very difficult for me as well. I thank God I don't get them more often.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | Victor H (06-13-2008) |
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#418 | |||
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Member
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I have a question for you long-term Ty users. I never missed one of my interferon shots, and set that as a goal for my Ty use.
My next infusion is July 2, which would put my one after that on July 30. I won't be around that day. It is my extended family's big yearly vacation, and I will be camping starting on the 30th through Aug. 5th. It is not an option to leave for the trip later. That is not my question. If you were me, would you postpone the July 2nd shot until July 7th (next time clinic is open) and then just be a couple days long for the next shot (Aug. 6th) or just have the July 2nd shot, and then do the next one 5 weeks later, rather than 4? Any input would be helpful!!
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With adversity comes two choices: either let it make you BITTER, or let it make you BETTER! I choose the latter. |
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#419 | ||
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Senior Member
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Quote:
I don't think that missing the infusion date by a short period will be a problem, but I suspect that your following infusions will be scheduled from that point onward (i.e. every 28 days from the infusion date). -Vic |
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"Thanks for this!" says: | 4boysmom (06-16-2008) |
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#420 | |||
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Member
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So, just putting it off for a week and having 5 weeks between rather than 4 will be okay?
I guess I should probably just ask my neuro what he'd prefer. And chances are good I might not be able to reschedule the Jul 2nd one until the 7th anyway. So I'd just have a five week between infusion 4 and 5. Hopefully that won't make me dead the whole week of vacation!
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With adversity comes two choices: either let it make you BITTER, or let it make you BETTER! I choose the latter. |
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