There used to be a site called "MS Patients for Choice.org" that provided a list of Tysabri infusion centers, but when I try to get to it now, it seems to have changed domains.

Does anyone know where the Tysabri Infusion Center information is kept now?

Thanks, Cherie

Hmmm, Cherie -

I know that at some point, Tysabri did have it on their website - a location search - but I just tried to find it and I can't. They must've taken it down.

I think you'd have to call them to find out....when I first started, it was that way. Then a while ago, I noticed it on their site - but like I said, it was some time ago...

~Keri

If you call MSActiveSource and give them your zip code and your patient registration number, they will give you a list of TOUCH Certified Infusion Centers in your area, or so they say.

According to my source, a complete list of all TOUCH Certified Infusions centers across the country is not available as it is considered proprietary information.

Ok.

Thanks Cheryl.

Cherie

I was just on the official ty website, and it has a search option for infusion centers near you. There is a little red triangle in the middle of the page that says, find an infusion center near you.

I used it and found another place in my city that I didn't know about.

yes, go to www.tysabri.com and it is right on the home page.

Thanks 4boysmom & babs.

Cherie

Thanks, this is new. They have added this feature since they updated their website and actually added Tysabri information!

I had my second Tysabri infusion today. They were overbooked and one of their IV "pumps" died so I waited 90 mins. in the waiting room before I even got put in the chair for the infusion. Yikes.

No real problems whatsoever except for the delay. I had a slight headache for the first 15 mins. I do feel like a truck has run over me though! I'm incredibly drowsy and not sure how much longer I can stay up. It's only 7 pm.

I also met a woman who just had her 17th infusion. No relapses for her since she started the Ty. and she looked great.

Whoohoo!! I'm just thrilled there are no wretched side effects like I had with the interferons and copaxone!

PS: Polar, how did your first infusion go?

I got a call from my doctor's infusion nurse on Friday when I was at work. They changed my appt to a day when my doctor would be there, so I go on the 22nd instead of the 25th. He's going to discuss the news of the PML cases and whatever that might mean to me.

If he suggests I stop the Tysabri, my answer would be a resounding NO WAY.

This is my week off and instead of going on vacation I'm doing jobs around the house. Today and tomorrow my task is scraping wallpaper borders. I will NEVER AGAIN put up wallpaper. Anyway, the point is, I have the energy to do this and to repaint after I finish all the prep. I'm painting all three bathrooms and the entryway. Then DH is going to rent a sod cutter so I can redo and add to my flower and shrub gardens outside.

I feel better than I have in five years, at least! I wouldn't have attempted this in the last several years.

On 8/22 I get infusion #16. My sister asked me if I would stop because of the PML cases, and I told her no way! She said, Oh, that's good!