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Old 08-11-2008, 10:32 PM #11
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ewizabeth ewizabeth is offline
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Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
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I got a call from my doctor's infusion nurse on Friday when I was at work. They changed my appt to a day when my doctor would be there, so I go on the 22nd instead of the 25th. He's going to discuss the news of the PML cases and whatever that might mean to me.

If he suggests I stop the Tysabri, my answer would be a resounding NO WAY.

This is my week off and instead of going on vacation I'm doing jobs around the house. Today and tomorrow my task is scraping wallpaper borders. I will NEVER AGAIN put up wallpaper. Anyway, the point is, I have the energy to do this and to repaint after I finish all the prep. I'm painting all three bathrooms and the entryway. Then DH is going to rent a sod cutter so I can redo and add to my flower and shrub gardens outside.

I feel better than I have in five years, at least! I wouldn't have attempted this in the last several years.

On 8/22 I get infusion #16. My sister asked me if I would stop because of the PML cases, and I told her no way! She said, Oh, that's good!
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