I had hoped to have my first infusion this Thursday but, so far, the insurance company has not gotten back with the neuros office. My dr is frustrated, but the coordinator in the office is completely blowing me off. No return calls as to the status (even though the dr called me himself, assuring me that she would call...)

Since I am off all meds, I would like to get this started! I know, patience! Thanks for letting me share!

~Teresa

Teresa,

Contact MS Active Source and have them (along with your physician) do the fighting for you.

They should get better results as a team.

-Vic

For those women on Tysabri, have you experienced any irregularities with menstruation? -- delayed, length of time of menses MUCH longer, spotting, or anything else? Does anyone know anything about this?

Feel free to PM me. Thanks.

Don't worry - you are fine. This is common with MS. I have it too. Sometimes more, sometimes much less (1 day 2 mos ago) . I've not had spoting yet but I assume it may come. I am told this is due to MS not TY. I think I agree, as it started just after my 1st relapse (b4 ty). I'm not a Dr, but based on me in the last 8 or so mos since DX, yes all has changed. I don't worry about this one. It is prob the only MS related prob I do not worry about. Hope this helps a little

a premed with Tylenol and Benedryl cannot hurt! Many Dr tell you too, many do not mention it. Mine never did, but I did tell them I premed Tylenol and Benedryl. They did not care, but I was the only one who premed. I was just scared as I am sure you were. I premed my 1st 5 infusions. I did not on my 6th and all still went fine. I think my body needed to adjust to TY. I would do the same again. I wanted to play it safe and I think I needed to. This is just MHO.

If u decide to premed again, I would not tell them. I think it is your choice. Many may disagree with me, but there is little I now have control over and I will or will not premed as I alone deam necessary.

Just an update on my Tysabri evaluation.

-Vic

Attached Images

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