What a roller coaster ride!

This has been fascinating to say the least.

Since I have been off of Tysabri (9 weeks now), my neuro-team has spent a long time trying to determin how to deal with my problem,..., only to find out that this infusion center cost issue has crushed several of their patients financially.

I know that Biogen has provided me one free "emergency infusion" for next week, and the new infusion center will only charge an insignificant amount. But,.., there's more...

The new infusion center will be charging the same amount as the previous one afterwards. Hence, the financial burden of Tysabri will remain in place.

My neuro-team has done what they can.
Biogen has done what it can.
My insurance has done what it can.

The infusion costs are waaaaaay too high.

As of two hours ago I have decided that Tysabri is no longer worth the financial strain.

Hence the reference to a "roller coaster ride".

Rebif is now back in my future.

As a side note, my neuro-team is reviewing two new studies that show that Tysbari can take between 4-6 months to finally leave your system. When the citations for the publications are made available I will post them.

So there it is...once again I am off of Tysabri but not concerned, just fascinated by the process and by how absolutely infuriated neurologists are (like patients) at the cost of infusions.

As Yeager says, "Press On..."

-Vic