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10-22-2008, 05:36 PM
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Magnate
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I got to thinking after I responded to your post on the MS board. Transient reactions have been noted in people who start Tysabri., with a lot of them calming after 4-6 infusions. If your blood test comes back positive for antibodies, your neuro may keep you on Tysabri for the next few months and check them again, as long as you aren't having full blown allergic reactions. That's why a lot of them use the benadryl/tylenol protocol. They aren't having anyone take more than 25-50 mg. of benadryl. The usual is 25 mg, more of a calming dose, to stop the histamines from ramping up. I'll see if I can find the info on this for you. I have it stored somewhere, but I am off to work and don't have time to search right now>
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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10-22-2008, 10:15 PM
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Grand Magnate
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 (Not that Joe's reaction seems too serious at this point ...). Or, do you mean "antibody" reactions?Maybe you know why the manufacturers (and FDA) have made a point of saying "Do not take Tysabri if you are allergic or have PML", yet many are advised to take antihistimines so that some allergic reactions end up being masked? To me, this seems contradictory, but maybe I'm missing some part of this story. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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| "Thanks for this!" says: | Victor H (10-23-2008) |
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10-23-2008, 01:46 AM
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Grand Magnate
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I am impressed that they took his blood to test for antibodies after his first reaction. And they did not test me until after infusion # four. In my case the benadryl did not mask the reactions, although I assume they could have been even worse.
Last edited by barb02; 10-23-2008 at 12:47 PM. Reason: typo |
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10-23-2008, 11:29 AM
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Grand Magnate
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I also agree that Benadryl will not mask severe reactions . . . but the documentation does not refer to JUST severe reactions. It says "do not take Tysabri if you are allergic", and it defines allergic reactions to include symptoms as minor as hives or itching. Benadryl may very well mask those type of symptoms. http://neurotalk.psychcentral.com/thread57177.html Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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