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Old 12-22-2008, 10:05 AM #1
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Originally Posted by Riverwild View Post
*This is the place to ask questions, get information, talk to people who are on Tysabri, and help each other out.*

The information about PML has been posted as it was reported, as has this death. When more information becomes available, it will be posted.

Please keep this thread to the spirit and reason for which it was started.

ditto.

this is not a thread for the nay-sayers of tysabri to post on.

this thread was made for those who are on tysabri or thinking about it to get information and support. from those who have first hand knowledge. people who have been on it or are on it.

the article and information about the person who had died was first posted in a responsable manner. others popping in with the "i told you so's" type of posts do not belong here. when all of the facts are reported (autopsy results i imagine) they will be posted. until then, yep, it's all just speculation.

natalie expressed it well.
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Old 12-22-2008, 02:05 PM #2
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Default some good news!!
Finally, some good news in this MS journey! I had an MRI after my 6th infusion of Tysabri. No enhanced lesions, no new lesions--everything looks just the same as it did before I started the drug. Whoohoo!! Now I am off to California to celebrate the holidays, my birthday, and no new lesions!!!
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Old 12-22-2008, 02:53 PM #3
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That's great news, Natalie! Congratulations.....and enjoy your holiday!

Oh, almost forgot.....Happy Birthday!
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Old 12-22-2008, 02:58 PM #4
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Happy Birthday Natalie!!



Way to go on the good MRI's!!
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Old 12-22-2008, 03:20 PM #5
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Thanks Wiz! B-day is 10 days and counting. This will be a better holiday season than last year. A year ago I was at the Mayo Clinic the day after Christmas getting the MS confirmation news and being told my brain looked like swiss cheese! Cheers to no additional holes this year!
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Old 12-22-2008, 10:30 PM #6
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Natalie!

During this Holy Season, it's WONDERFUL to hear your un-holey news!

Please have fun in Cali and forget the fact that you have MS and enjoy the holiday!!!
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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Old 12-23-2008, 10:28 AM #7
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Hi everybody! Well, I have some not so great news. . Although my mri latest mri is stable, I've decided to stop Ty. I've been getting worsening headaches (disabling pain, I guess equivalent to a migraine) immediately after each infusion even though I take the Tylenol and Claritin before. They last for more than a day. I also get bodyaches, chills, and a low-grade fever. After discussing this with my neuro and my dh, I've decided to stop after my 10th infusion. I hope I'm making the right decision. ARGH!! I'm just so pssd off that these dam drugs keep failing me in one way or another! Thanks for listening.
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