I'm happy to hear you found a doc you can live with, Sheena. Having a neuro you can rely on and relate to is 95% of the battle with this stupid disease!

Cost IS a factor in the decision for most of us, whether on Ty or any other DMD. I know I wouldn't be able to afford to pay out what others have paid to stay on Tysabri. I'd research every avenue and bully my insurance co. and the med center and anyone else I had to if it came down to staying on or going off at this point.

It is soooo darned nice to NOT have to worry week after week, wondering what's going to go haywire next and being scared of how to cover and deal with relapses when working and living life.

I was ready to travel 200 miles to get Ty back when it was first returned to market. I just got lucky that the new neuro decided he liked sailing better than money at this point in his career! 20 miles is a whole lot better to swallow than 200 miles when it comes to traveling!

I think a LOT of neuros haven't got time to do the continuing ed, to keep up on the data coming out about Ty, to do the research, or they are afraid (first, do no harm...) of what they have heard about Tysabri. It's the docs who ARE keeping up who are prescribing and giving MS patients a chance to have some QOL and reduction of symptoms and progression.

Tysabri isn't the answer for everyone and it isn't a cure, but it IS the answer for me and my MS at this point, and for a whole lot of other folks too.

As far as doing the "roids, my neuro put me on a course before I had my first infusion. I was in a relapse and his feeling was and is that NO relapse is a good relapse, that time IS brain, and that it's an all out no holds barred fight when it comes to retaining brain/CNS function, and I agree.

Let us know how it goes!