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Old 03-02-2009, 09:57 PM #1
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Welcome back RW! Get well soon and keep us posted on your next infusion date.
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RRMS DX 01/28/03 Started Copaxone again on 12/09/09
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Old 03-03-2009, 08:30 AM #2
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Quote:
Originally Posted by ewizabeth View Post
Welcome back RW! Get well soon and keep us posted on your next infusion date.
Thanks Wiz!
I am hoping for two weeks or less, but it's up to the doc at this point. I truly hated not being able to have it because I want to be one of the success stories who stays on track. I'm just an overachiever!

We COULD end up back on the same schedule again!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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Old 03-03-2009, 10:21 AM #3
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Riverwild

Welcome back hope you are feeling better.

I am very happy to say that i did have my 5th infusion. All went well after the iv was finally started. That took 4 sticks. No problem with blood draw but then it came to starting the iv one person tried twice and said no more next one was successful on # 2. Anyone else have thsi problem. Last time took 2 tries all others just one. Because i was itchy last time he gave me Benadryl before the infusion but said next time take Clariton before i come. It does not make you sleepy.Last infusion was in Fl so he did not know.

Good luck to everyone have a great day.
laurie f
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Old 03-03-2009, 11:34 AM #4
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RW, glad you are doing OK.

I hope that eveyone is doing well with their Tysabri.

Quitting Rebif may have been one of the best things I could have done because of the incredible amount of dizziness that I experienced. Fortunately, I delayed taking my next Rebif shot for a few hours last week which meant that I was not dizzy when I got the call about my wife's bicycle accident. If I had taken the Rebif, there would have been no way that I could get to the hospital, let alone stay the night with her in the ER.

Now I regret stopping Tysabri.

-Vic
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Old 03-03-2009, 11:50 AM #5
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Vic,

I'm so sorry about your wife's accident! I hope she's going to be ok! Darn medicines anyway. I wish there was a way you could be back on the Tysabri.
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RRMS DX 01/28/03 Started Copaxone again on 12/09/09
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Old 03-04-2009, 01:47 AM #6
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Hi Vic, Well that is frustrating...I was hoping you could tolerate the Rebif. Sorry it's not working. Is your wife okay??? That must have been scary. Please keep us posted on how she is doing.
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Old 03-04-2009, 04:46 PM #7
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Quote:
Originally Posted by Victor H View Post
RW, glad you are doing OK.

I hope that eveyone is doing well with their Tysabri.

Quitting Rebif may have been one of the best things I could have done because of the incredible amount of dizziness that I experienced. Fortunately, I delayed taking my next Rebif shot for a few hours last week which meant that I was not dizzy when I got the call about my wife's bicycle accident. If I had taken the Rebif, there would have been no way that I could get to the hospital, let alone stay the night with her in the ER.

Now I regret stopping Tysabri.

-Vic
Vic, I am sorry to hear your wife had an accident-hope she is doing ok.
I wish your ms treatment was going well Maybe what's happening in the pipeline will become avail soon and will be right for you.

Wishing you my best,
Linda (lindaincolorado )
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Old 03-07-2009, 01:50 PM #8
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I found a good "article" or CME/CEU from a doc about Tysabri. It gives you insight on the thought process your neuro should go through when something happens outside of norm while on Tysabri.

It's also reassuring to actually read in print about transient antibodies for those of you just starting out.

http://www.projectsinknowledge.com/c...856&sj=1858.04
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline  
"Thanks for this!" says:
ewizabeth (03-07-2009), Grammie 2 3 (03-08-2009), Natalie8 (03-07-2009)
Old 03-07-2009, 01:55 PM #9
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Quote:
Originally Posted by Victor H View Post
RW, glad you are doing OK.

I hope that eveyone is doing well with their Tysabri.

Quitting Rebif may have been one of the best things I could have done because of the incredible amount of dizziness that I experienced. Fortunately, I delayed taking my next Rebif shot for a few hours last week which meant that I was not dizzy when I got the call about my wife's bicycle accident. If I had taken the Rebif, there would have been no way that I could get to the hospital, let alone stay the night with her in the ER.

Now I regret stopping Tysabri.

-Vic
Vic, I am so sorry to hear that your better half had a bike accident. I hope all is well and that she is back on her bike soon!

I missed the telling, what happened?

I'm also glad that you were in full posession of senses when it all happened.

I wish you still had Tysabri too.

Please give your wife our regards and best wishes.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline  
"Thanks for this!" says:
ewizabeth (03-07-2009), Natalie8 (03-07-2009), SallyC (03-07-2009), Victor H (03-17-2009)
Old 03-09-2009, 04:23 PM #10
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I had my infusion today. Everything went well. My mood is much better compared to three weeks ago.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline  
"Thanks for this!" says:
Natalie8 (03-09-2009), Riverwild (03-09-2009), Victor H (03-17-2009)
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