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#11 | |||
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Magnate
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Ahhhhhh...
# 24 down!! ![]() No problems, no concerns (except for the FOUR misses before the nurse hit the vein on her last try before I called in a phlebotomist!) Saw my neuro afterwards and he asked me if I was ready for a drug holiday yet!!! ![]() ![]() ![]() I was all confused and said...um...NO? (this is the guy who said he isn't in favor of drug holidays) ![]() He started laughing and said he didn't think I would want one ![]() I told him the one I missed was the only holiday I was planning to take!! We talked about the Biogen reports and he told me that he was informed that the patient who died (49 y.o F, methotrexate prior to Tysabri with last Metho TX 4 months before infusion) and her family had refused all further treatment after she was diagnosed with PML. He stressed the importance of being vigilant about any changes in thought process, affect, vision, etc and that he wanted a call even if we thought it was "nothing" Since the old man was there with me he told HIM that he could call too since I seem to have a problem admitting it when something is wrong with me...(LMAO! That was a shot at me for the appendix!) In short, it was a VERY good day! I did let him know that I had noted increased stiffness and fatigue, but could not put it down specifically to missing the last infusion since everything else was whacked out at the same time! ![]() Hope everyone's doing well! ![]()
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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