[Twinkletoes]

Went to 9 mo. neuro appt. today. Was dreading it b/c Tamara, the really nice PA, no longer works there. Hardly have talked to the doc and knew he had no bedside manner.

HOWEVER, I was pleasantly surprised! Because of the snowstorm, DH and I were the only ones in the office. So, Dr. actually sat down and we made conversation! Woohoo! (Well, sort of: I asked lots of questions -- even personal ones -- and he answered them.)

When DH got a phone call, Dr. and I kept conversing. Happy to say I feel better about him now. He answered every question I could think of about Tysabri. Will be starting that in about a month.

I was seriously considering changing neuros, but there are only 3 MS specialists in the whole state. He's old (72) and prickly, but Harvard educated and committed to helping patients be informed so we can make the decisions that are best for us.

Guess I'll keep him after all.

[Koala77]

I'm so pleased your appointment went well Ro, and I'm thrilled for you that you'll be starting Tysabri soon!

Australia is still in the testing phase for Ty, so I guess it'll be quite some time before it's offered as a treatment here.

It's rather good that you didn't give this neuro away considering this very positive visit for you.

I also saw a neuro this week.....a new one for me! Every time I move house it seems I have to find a new Neuro! The fact that I move states obviously has something to do with that! :-)

He's ordered a new MRI of my brain and cervical spine ('cos of my recent exacerbation), and he mentioned some other test I've never heard of....similar to the VER (or) VEP) I had of my optic nerves, just on my spinal nerves this time instead!

He also asked me what medications I was on for MS. I told him what I'd tried and why I wasn't on anything. He said if I got worse, or had a bad relapse, he'd be giving me chemo..! Not sure that I'm too happy about that. I can't even remember the name of the drug he said 'cos I was a bit too stunned to take it in at the time. I do remember it wasn't any of the ones like Methotrexate, because I'd remember that.

I go back to see him in 4 weeks time to get the MRI results and may have to ask him again. I doubt very much that he'll get me to agree to chemo!

[Victorya]

>>>My Neuro isn't an Ogre after all! <<<


Are you sure??? I could have sworn I saw him under the bridge just last week waiting for the 3 billy goats gruff...

But maybe I was mistaken


Glad you made "friends" with the doc. I firmly believe it's much easier to have your needs met when the you and the doc are more on the same page.

Happy for you!

[PolarExpress]

Good for you, Rochelle! The MS nurse I was fond of isn't around my neuro's office either, so it's different going there..But he's a good guy (busy, buy good). Glad you had the chance to spend quality time!

[momXseven]

Originally Posted by Victorya

Are you sure??? I could have sworn I saw him under the bridge just last week waiting for the 3 billy goats gruff...

But maybe I was mistaken

No that was my neuro you saw under the bridge.

[Jan4you]

WOW, well thank goodness for the SNOW... go figure!!
Hope he continues to be a caring sense of support and knowledge for you.

Did your DH comment on his change at all??

Warmly Jan

[jprinz99]

Hot diggity! I am so glad you made a connection to him. Hopefully this continues well into the future. Congratulations!!!! You must be so happy and relieved

[the Bird]

I'm glad you feel better about your neuro! That is GOOD news!

[Nancy T]

Yay for snowstorms! It's so nice have some unexpected free moments to make a personal connection with someone you otherwise never could.

I loved chatting with the patrons at the library where I used to work, but where I work now is way too busy for that to happen except occasionally, even though I know many patrons would like to chat with us, learn stuff about the library, make a little connection with the folks who bring them their beloved books. But there's almost always six or fifteen people in line behind them, so we can rarely do that.

Once when I took a friend to an appointment with a prominent dizziness specialist, it was the end of the day and we ended up chatting with him and his wife. We got to hear tales of how he was a forest-fire lookout in his younger days. Who'd a thunk! And this guy that I always thought looked so gruff actually seemed shy and very human.

Well, T-toes, I hope your neurologist continues to be a good one for you!

Nancy T.

[tamiloo]

Fantastic...good for you!! How was the drive home...as far as the snow goes...when your from the north country driving in snow just makes for interesting driving...keeps me awake...

It was great spending time with you and Paul on Thursday evening. I got the pictuce...good one, now how do I get it to a printing state...take care!!!