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02-03-2008, 11:05 AM
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#11 | |||
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Grand Magnate
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Glad to hear that the snowstorm was a blessing in disguise. Glad you had a real talk with the neuro.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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| "Thanks for this!" says: | Twinkletoes (02-04-2008) |
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02-03-2008, 11:10 AM
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#12 | |||
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Grand Magnate
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I'm glad to hear that you made it to your appointment and that it went well. I go for ty#3 on Wednesday so if you have any questions, just let me know.
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| "Thanks for this!" says: | Twinkletoes (02-04-2008) |
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02-03-2008, 12:32 PM
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#13 | |||
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Member
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Hi Rochelle,
Well, so your neuro puts on his pants the same way you do? How refreshing. You caught him on a good day and not too busy. He probably relied heavily on his PA, who I'm sure was younger, to assist his patients. Now he is back to practicing medicine by himself for now and has to put his personality back into his practice. It was refreshing to read your post and I agree that you should stick with this neuro as you can always find a new one later on. He is probably thinking retirement at sometime soon.
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Craig Mattice "Live Like You Mean It!" . Dx'd 12/00 w/RRMS Dx'd 05/01 w/SPMS 03/05 Rescinded MS Dx Neuro thinks something else 03/06 New Dx of Hereditary Spastic Paraplegia (HSP) Rare deteriorating motor neuron disease. No cure. No Treatments. Only 20,000 Dx'd patients in US |
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| "Thanks for this!" says: | Twinkletoes (02-04-2008) |
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02-04-2008, 02:52 AM
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#14 | |||
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Grand Magnate
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Quote:
Thanks to everyone! Wasn't expecting many responses, so each is very much appreciated. Sorry I am late in responding, but have been out of town (it's Tamiloo's fault!!!)  J/KCraig, interesting you bring up retirement. I questioned him about this, and he claims he will never retire until forced to do so. Dr. said that he became an MS specialist about 6 years ago. He has been a neuro for years, even during WWII in the Navy. He explained that because he was getting old, he didn't want to have to stay on top of every neurological issue, so decided to specialize. I know he won't outlive my MS, and must put off wondering what to do when he's no longer available. I'll worry about that when the time comes!
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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02-04-2008, 01:24 PM
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#15 | |||
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Grand Magnate
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Twas not my fault...you are the party animal...
 I came home and went back while you were still playing...don't know if I will ever catch up on my rest.... 
__________________
My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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| "Thanks for this!" says: | Twinkletoes (02-04-2008) |
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02-04-2008, 03:12 PM
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#16 | |||
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Magnate
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Great news Twink! I am so glad to hear you were able to connect with your neuro. It sure does make it easier when you connect on a more personal level, doesn't it?
As for the Tysabri thing, WOW! I sure hope it goes well for you and that you check in on our Tysabri thread! We'll be waiting to hear how it goes for you! And then, on top of all your other news, you got to spend time with a board buddy again! Jeeez, you sure do get around!!  Glad to hear you, DH, Tamiloo and the Ol' Hippie had fun!!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | Twinkletoes (02-04-2008) |
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02-04-2008, 03:18 PM
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#17 | |||
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Member
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That is great Ro!!! Good luck with the tysabri and your next visits with the Doc!
__________________
. Live, Laugh, Love |
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| "Thanks for this!" says: | Twinkletoes (02-04-2008) |
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02-04-2008, 03:23 PM
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#18 | ||
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Senior Member
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Good wishes starting the Ty! My Optho/Neuro is convinced that Ty is the way to go....IF I had been dx'ed...he was just sharing with me that if I did get a dx, he'd recommend it more than the copaxone.....Snow storms do slow things down a bit huh
Glad you got some quality time with the neuro!! HUGS!
__________________
. Wisdom to the soul is what health is to the body |
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| "Thanks for this!" says: | Twinkletoes (02-04-2008) |
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02-04-2008, 05:02 PM
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#19 | |||
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Member
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Whew, I finally made it! I'm sooo glad you are liking your Neuro, that is very important! Hope to catch you on chat. Love ya!
__________________
Deb Dx'd - July 2001 . |
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| "Thanks for this!" says: | Twinkletoes (02-05-2008) |
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02-04-2008, 05:13 PM
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#20 | |||
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Grand Magnate
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Thanks everyone!
Riverwild, about the GTG with Tamiloo and Olhipie: What happens in Salt Lake City, STAYS in Salt Lake City! LOL! As IF! *roll eyes* GJ, glad to see you still around! Cool avatar. Is there a polar bear in there somewhere? Yes, I am reading the Tysabri thread with interest. Will definitely be checking in there frequently. Thanks again people!
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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