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Old 02-04-2008, 11:59 AM #1
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the best medicine in a case like this is a great big
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momXseven (02-04-2008)
Old 02-04-2008, 12:36 PM #2
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I can relate. My Mom (and Dad for that matter) wouldn't tell me things unless I asked, and even then I wasn't sure to get an answer. But we haven't spoken in about 10 years. They don't know about my MS.

As for keeping information to themselves; when I was 16 I was hospitalized for a week for a series of tests for a limp I developed. about 5 years later I read an article about a woman with MS and the tests she went through. They were the same tests I had done! Assuming a clean bill of health, I never thought too much more about it.

Flash forward 30 years. New SX, new tests, new Dx, MS. I write for my records from way back when and discover a diagnosis of RSD! No one ever told me about it.

The things parents do in the name of protecting you. (I'm sure my mom didn't want me to worry about it, which, as it turned out I didn't have to. I'm one of the lucky few whose RSD goes into remission and stays there.)
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Old 02-04-2008, 12:46 PM #3
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I can relate. My Mom (and Dad for that matter) wouldn't tell me things unless I asked, and even then I wasn't sure to get an answer. But we haven't spoken in about 10 years. They don't know about my MS.

As for keeping information to themselves; when I was 16 I was hospitalized for a week for a series of tests for a limp I developed. about 5 years later I read an article about a woman with MS and the tests she went through. They were the same tests I had done! Assuming a clean bill of health, I never thought too much more about it.

Flash forward 30 years. New SX, new tests, new Dx, MS. I write for my records from way back when and discover a diagnosis of RSD! No one ever told me about it.

The things parents do in the name of protecting you. (I'm sure my mom didn't want me to worry about it, which, as it turned out I didn't have to. I'm one of the lucky few whose RSD goes into remission and stays there.)
WOW, I can't imagine being DX with something (not knowing it) and my mom not telling me. So glad the RSD hasn't been giving you problems.
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Old 02-04-2008, 02:25 PM #4
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my parents were both VERY close-mouthed about medical histories and personal histories.

it wasn't until I was having my first baby that I learned (from my mom) that:

1. my maternal grandmother was actually a STEP-grandmother, that my biological grandmother had died in childbirth... and two of her sisters had MS.

2. my paternal grandfather was ALSO not related to me biologically, he married my Nana AFTER she had two children by a previous husband.

3. bipolar disorder and MS run in my family, and that over a DOZEN of my uncles, great-uncles, and aunts had been institutionalized, or committed suicide.

skeletons, skeletons...
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Old 02-04-2008, 03:22 PM #5
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My mother had Polio growing up and was VERY closed mouthed about all she went through, and always felt like a burden on the family. We have spent many distant years apart, for many reasons. We now have some contact after years apart. There is NO WAY I could/should drag her to an MD.

Please know that your mom does NOT want to open that can of worms. She was probably in her own way trying to reach out to YOU! and did not mean to open the door to you interrogating her about whether she does or doesnt have MS.

There are many that may have it, but are quite happy with the answers they have been given and have come to terms with how to live around what ever symptoms they have. Unless your mom is not ambulatory, or is in great pain, or in such a cog fog that she is not making any sense, the best you can do is let her know you are there for her IF she ever decides to investigate it further. As for now, it sounds like she has given you her answer.

you have quite a full plate with all that is going on in your life. you have children to care for, and you yourself dont feel good. your husband is just now starting to see that you are experiencing something beyond anxiety. I know you are fighting hard to get some answers and trying to make sense of what is happening to you.

I walk that same fragile thin line with my own mom, and I know how quickly it can be blown away. Just as you would not want her standing over you to tell you how, when, and why do get things done, its not fair to do it to her.

I am glad you two are talking again. grandmoms can be awesome!
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Old 02-04-2008, 03:32 PM #6
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Just makes me wonder if the doc's would take you more seriously if they had known about your mom's MS.

I don't know a lot about my family history.

I do know I had an Aunt with severe spasticity. I have no clue why.
I also have a second cousin with SPMS.

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Old 02-04-2008, 03:42 PM #7
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Quote:
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Just makes me wonder if the doc's would take you more seriously if they had known about your mom's MS.

I don't know a lot about my family history.

I do know I had an Aunt with severe spasticity. I have no clue why.
I also have a second cousin with SPMS.

DAY
LOL, this is the 1st thing I thought, 2nd was concern for my mom, LOL.
No really like I said I know they say the MS isn't hereditary but than you read over and over agin how more than one family member has MS.
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