Just makes me wonder if the doc's would take you more seriously if they had known about your mom's MS.

I don't know a lot about my family history.

I do know I had an Aunt with severe spasticity. I have no clue why.
I also have a second cousin with SPMS.

DAY

LOL, this is the 1st thing I thought, 2nd was concern for my mom, LOL.
No really like I said I know they say the MS isn't hereditary but than you read over and over agin how more than one family member has MS.

Isn't passed every time doesn't mean that there aren't correlations. I don't think they've isolated how it's passed, but I was pretty sure they know it is passed. It's not that most people do pass it on. We just have higher risks.

Heck, I'd worry more about passing on my families heart & cancer problems than my MS, and so far I've had neither cancer nor heart problems. We all pass some of the good and some of the bad. It's a crap shoot on what's sent.

Hi Momx7,

I would also be pretty shocked to learn this info! I have to believe that your mom emailed you to find out how your LP went because she truly does worry about you. The fact that, in the past, she was also tested for MS must weigh heavily in her mind. Since "if you don't think about it, it's not there" has worked for her, it sound like she may be suggesting you do the same.

Of course, whether or not she has MS would be helpful for you (and your Dr) to know. However, it sounds like she's content where she is. That doesn't mean that this is the path for you. Maybe you could explain to her that, just as she might prefer to not know exactly what is going on, you, on the other hand, have a need to know if you do indeed have a medical condition.

I, too, have a very strained relationship with my mother. I feel that a lot of what I believed about my own childhood was distorted by her. She never directly asks me about my ongoing testing, but questions my sisters about whether or not they know "what's wrong with me yet." Although, my mom has a lot of difficulty telling me this, I know she does care about me. Sometimes, people can have so much trouble telling their loved ones how much they love them. (me included)

Mom, I haven't read anyone else's response yet....my mouth flew open though when I read this.

Look, this is more about YOU.....she doesn't WANT to know she has anything wrong with her, so let her be. But YOU need to tell YOUR doc about this....This sounds more in your favor for filling in the puzzle pieces.

Maybe she will tell you her sx that brought her to the doctor at the time the "crazy doc" suggested she have MS in an email. I would ask using the words she used to describe the doctor and the time she was there....she just might give you some very valuable information.

Don't worry about "fixing" her...that's up to her!

Good Luck!

Mom, I think you're partly right, that your mom doesn't want to know she has ms. so she certainly does not want you to have it.

She can't control what is by wishing it away and putting her head in the sand though.

And you can't change her.



Part of it though is people of older generations were SO like that about not going to doctors and having the attitude "I'm not sick!"

Think about it, we (our generation) get it pounded in our heads that there's something wrong with us. Drug commercials all the time on tv, ads in every magazine. Yikes!

And the older people are looking at us as if we fall for all that stuff - you know they do. Just because there's more info and more meds for diseases does not mean we're a bunch of hypochondriacs, but the old folks like the docs seem to think we are sometimes.

I never heard anyone talk about my older relatives' illnesses until I got sick and asked. They just didn't bring that up. They didn't know medical words like we do, and it seemed like they though it was shameful to be ill.

Being the youngest, my older sibfreaked when this happened to me. Some would not even let anyone talk about it. I had to corner one of them and say this,

"I'm not looking for attenion or sympathy. But you should know that if I have ms, you wanna keep that in mind because you have kids. It can run in families. So if by some horrible long shot, something comes up with your girls, you can tell their doctor their aunt has an auto immune disorder. That could save them a lot of horsing around getting a diagnosis."

Similarly I got info about the relatives by saying I'd figure out what was wrong with me faster if I had a complete family hx - not because I wanted to be nosy, but because I wanted the right dx.

Thank you everyone for you replies. Just wanted you all to know, I'm not spending my time worrying about my mom. She able to take care of her self. I do feel better about pushing for an answer on why I have all these SX now. I don't feel at all that they are from stress or anxiety. Anyone that knows me knows I'm not one to worry about much and knows when I'm stressed. Everyone around me can read me like a book. The only thing I do worry about a lot is my memory is SO bad, I don't worry about it too long tho because I forget what I was doing.

Sounds like your Mom is in mega denial over her situation. Not unlike my Mom who doesn't go to the doctors unless profusely bleeding or unconscious.

She is an adult and will do as she wants regardless of your opinion or attempted intervention. I just think it would have been nice if she had informed you of this situation earlier on in your diagnosis journey. There are familiar linkages to MS.

In the meantime, just concentrate on your own health and what works for you. Your Mom shouldn't be a positive or negative influence on your life. You too are now an adult and can choose what is best for you and your family.

I wish the best for you.