I was also just thinking maybe my thigh muscles are always hurting but after my legs go numb I don't feel the pain.
This has only been going on for about 5-6 weeks, before Dec 27th I haven't had but a few odd things (numbness related) over the past 4 years, never a every day issues like I'm having now so I haven't started a SX diary yet.

Have you thought about another Nuero? Have you had a second opinion? A doctor that wants to wait untill you can't walk at all is crazy.

I agree that's crazy, Yes I have thought about a new neuro, I just haven't made it in to see him yet, I had an appt. set up for my 2nd opinion but I had 2 kids get sick and I had to cancel. I'm trying to get in the see my new PCP 1st and see what she has to say about all this and than get the 2nd opinion from the new neuro.

You should do a symptom diary whenever you start getting new and weird symptoms. I keep meaning to do it, but forget to write stuff down. This would have been a good thing to have at the neuro's office last week, because I couldnt remember all the little piddly weirdo symptoms that I'd been having...at least I remembered the big stuff...numb legs and twitchy eyeballs.

I know, I did write down what I could remember after my last post to you.

That happens to me too....I have an issue and then forget to talk about it!

Julie,

Sending even MORE hugs to you! Sounds like your neuro frankly sucks and I hope that you can get into the new neuro for a second opinion soon.

I also have to chime in about keeping a symptom diary. I find it much easier to have a list of concerns and symptoms with me so I don't forget to mention them. I also have DH come with me to any *major* appointments, one of which is the neuro. A lot of times he can help clarify things if I'm having trouble putting my thoughts into words and it also helps my neuro in some cases to get DH's viewpoint.

Hope your children are feeling better soon!

Actually, this is EXACTLY how several of my flares started.

I even ended up at the neuro's office (actually, it was the neuro on call because mine was on vacation) because I had a wierd numb/Pain in my arms.

My reflexes seemed a little slow, but nothing too bad. Finally, the neuro said that if it was a flare, it wasn't bad enough to treat, and sent me home.

About two weeks later, the numb/pain turned into COMPLETELY NUMB. Then the numbness travelled down to my legs. I went back to the neuro when the numbness started affecting my walking. The neuro asked me to walk down the hallway towards him, so he could evaluate my walking.

I did O.K. till I got very close to him...then I tripped, and knocked him over and landed on top of him!

I've never seen my neuro so enthusiastic about writing a script for IVSM!!

LOL, OMG that is funny, to trip and knock down your Dr and than fall on him. I bet he did write out that script fast.

What part do you mean you start of your flares the same way, the muscles hurting before going numb or the going numb every day the same way or both?

I start with an ache in the muscles. Not a bad ache...more of an "I can't get comfortable" ache...followed by an "if this ache doesn't stop soon I'm going to cry" kind of ache.

Then it morphs into numbness with the ache. Everything hurts but if I touch my skin, it feels like I have had a shot of novacaine.

Then it morphs into numbness bad enough to affect my walking. If you can't feel the ground with your foot, you a hard time walking without looking at your feet.

This causes me to trip and fall. This is when I get the IVSM.