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#1 | |||
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Grand Magnate
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It's only 2 reported cases so far, and so many people using it, so it's probably not a big concern.
I have heard several people say that their moles or scars have changed or disappeared completely though, so it seems perhaps 'something' is happening. ![]() Cherie As you've pointed out, Ewizabeth, I think those with skin cancer in their family would be wise to be checked out first.
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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#2 | |||
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Member
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I have always had atypical moles but never a melanoma. I am not on tysabri. But it is very interesting the link. I think it has more to do with the immune system rather than the meds. Just my thought ![]()
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. Live, Laugh, Love |
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#3 | |||
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In Remembrance
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One more log in the Ty fire....sheesh. Maybe one day we won't have to poison ourselves to slow or stop this disease..
![]() Sending prayers for all Tysabri users, that this does not happen to you. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Jodylee (02-09-2008) |
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#4 | |||
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Elder
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I've had a couple of friends who have had their moles completely disappear. One has been on Ty for 48 infusions. Yes, she was in the clinical trials w/Avonex.
Anyone with a history of moles should be checked whether they are on Tysabri or not, that's just good common sense. There is no way of knowing whether or not Tysabri had anything to do with the advancement of these moles. I have a history of basal cell carcinoma and have had 6 removed, 5 from my back and 1 from the side of my face. I get checked every 6 months now b/c the 1 on my face was pretty deep and persistent. Let's hope this is an isolated case. Maybe I can blame tylenol for mine! Just kidding... ![]() Thanks for the info Cherie. ![]()
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | Riverwild (02-09-2008) |
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#5 | |||
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Elder
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This reminds me...I need to get the moles on my shoulder and my right arm checked/removed.
Oh...and have the one on my butt checked. (boyfriend informed me I have a mole there) I'm not being sarcastic here...the mole on my arm has gotten a little bigger in the past year (I'm not on Ty...been on the C since september) Time to get some moles removed. (been there, done that before, but they were just moles, not anything scary) |
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#6 | |||
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Member
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I've had a melanoma removed but went on Requip anyways which also has a warning of melanoma as a side effect. The RLS was too bad for me to not go on something and I figured I would just watch close.
Not on Tysabri but was just recently considering it if the Copaxone doesn't keep me stable. I don't know if I would chance it now. I'll just have to keep watching for anything new. Melanoma in the brain was what they were ruling out when they did my 2nd MRI and found MS lesions instead. I was almost happy at the time with my diagnosis.
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If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals |
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#7 | |||
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Grand Magnate
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I suppose I will mention this to my pcp when I get back from my trip. I would probably need a referral from him to see a dermatologist. I unfortunately have numerous moles/freckles. Spent alot of time as a sun worshiper in my teens and twenties. I guess this is just one more thing for all of us to worry about. I wonder if there is any connection between tysabri and hot flashes.
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#8 | ||
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Senior Member
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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#9 | |||
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Magnate
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The National Multiple Sclerosis put out a bulletin on this topic. It doesn't sound too much different than what has already been reported ---
http://www.nationalmssociety.org/sit...earch_2008feb7
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Dx RRMS 1984 |
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