Reply
 
Thread Tools Display Modes
Old 02-07-2008, 12:45 PM #1
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

It's only 2 reported cases so far, and so many people using it, so it's probably not a big concern.

I have heard several people say that their moles or scars have changed or disappeared completely though, so it seems perhaps 'something' is happening.

Cherie

As you've pointed out, Ewizabeth, I think those with skin cancer in their family would be wise to be checked out first.
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 02-07-2008, 01:03 PM #2
Girlie Girl's Avatar
Girlie Girl Girlie Girl is offline
Member
 
Join Date: Jan 2008
Location: Massachusetts
Posts: 604
15 yr Member
Girlie Girl Girlie Girl is offline
Member
Girlie Girl's Avatar
 
Join Date: Jan 2008
Location: Massachusetts
Posts: 604
15 yr Member
Default

Quote:
Originally Posted by lady_express_44 View Post
It's only 2 reported cases so far, and so many people using it, so it's probably not a big concern.

I have heard several people say that their moles or scars have changed or disappeared completely though, so it seems perhaps 'something' is happening.

Cherie

As you've pointed out, Ewizabeth, I think those with skin cancer in their family would be wise to be checked out first.
I read somewhere, don't ask me where, that melanoma and MS are linked. Wouldn't you know a couple of weeks after I read that I had a new mole, it was melanoma.

I have always had atypical moles but never a melanoma. I am not on tysabri. But it is very interesting the link. I think it has more to do with the immune system rather than the meds. Just my thought
__________________

.
Live, Laugh, Love
Girlie Girl is offline   Reply With QuoteReply With Quote
Old 02-07-2008, 01:08 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

One more log in the Ty fire....sheesh. Maybe one day we won't have to poison ourselves to slow or stop this disease..

Sending prayers for all Tysabri users, that this does not happen to you.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-09-2008)
Old 02-07-2008, 01:13 PM #4
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

I've had a couple of friends who have had their moles completely disappear. One has been on Ty for 48 infusions. Yes, she was in the clinical trials w/Avonex.

Anyone with a history of moles should be checked whether they are on Tysabri or not, that's just good common sense. There is no way of knowing whether or not Tysabri had anything to do with the advancement of these moles.

I have a history of basal cell carcinoma and have had 6 removed, 5 from my back and 1 from the side of my face. I get checked every 6 months now b/c the 1 on my face was pretty deep and persistent.

Let's hope this is an isolated case.

Maybe I can blame tylenol for mine! Just kidding...

Thanks for the info Cherie.
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Riverwild (02-09-2008)
Old 02-07-2008, 01:53 PM #5
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

This reminds me...I need to get the moles on my shoulder and my right arm checked/removed.

Oh...and have the one on my butt checked. (boyfriend informed me I have a mole there)

I'm not being sarcastic here...the mole on my arm has gotten a little bigger in the past year (I'm not on Ty...been on the C since september)

Time to get some moles removed. (been there, done that before, but they were just moles, not anything scary)
Erin524 is offline   Reply With QuoteReply With Quote
Old 02-07-2008, 02:54 PM #6
sassy's Avatar
sassy sassy is offline
Member
 
Join Date: May 2007
Location: Michigan
Posts: 681
15 yr Member
sassy sassy is offline
Member
sassy's Avatar
 
Join Date: May 2007
Location: Michigan
Posts: 681
15 yr Member
Default

I've had a melanoma removed but went on Requip anyways which also has a warning of melanoma as a side effect. The RLS was too bad for me to not go on something and I figured I would just watch close.

Not on Tysabri but was just recently considering it if the Copaxone doesn't keep me stable. I don't know if I would chance it now. I'll just have to keep watching for anything new.

Melanoma in the brain was what they were ruling out when they did my 2nd MRI and found MS lesions instead. I was almost happy at the time with my diagnosis.
__________________
If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis
Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals
sassy is offline   Reply With QuoteReply With Quote
Old 02-07-2008, 04:13 PM #7
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default

I suppose I will mention this to my pcp when I get back from my trip. I would probably need a referral from him to see a dermatologist. I unfortunately have numerous moles/freckles. Spent alot of time as a sun worshiper in my teens and twenties. I guess this is just one more thing for all of us to worry about. I wonder if there is any connection between tysabri and hot flashes.
barb02 is offline   Reply With QuoteReply With Quote
Old 02-07-2008, 04:16 PM #8
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Default

Quote:
Originally Posted by barb02 View Post
I suppose I will mention this to my pcp when I get back from my trip. I would probably need a referral from him to see a dermatologist. I unfortunately have numerous moles/freckles. Spent alot of time as a sun worshiper in my teens and twenties. I guess this is just one more thing for all of us to worry about. I wonder if there is any connection between tysabri and hot flashes.
I guess it depends on your insurance but I have BC/BC and I just made the appointment knowing I'd pay out of pocket if necessary. It turned out that the Doc took it and they paid. Suspicious moles aren't anything to ignore and especially for someone that has a lot its a good idea to get your baseline. Good luck.
__________________
He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
Jules A is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (02-07-2008), Riverwild (02-09-2008)
Old 02-07-2008, 06:40 PM #9
Snoopy's Avatar
Snoopy Snoopy is offline
Magnate
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Snoopy Snoopy is offline
Magnate
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Default

The National Multiple Sclerosis put out a bulletin on this topic. It doesn't sound too much different than what has already been reported ---
http://www.nationalmssociety.org/sit...earch_2008feb7
__________________
Dx RRMS 1984
Snoopy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Koala77 (02-08-2008), Riverwild (02-09-2008), tovaxin_lab_rat (02-08-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Leaky Gut and Multiple Sclerosis BobbyB ALS News & Research 0 12-10-2007 07:41 AM
Multiple sclerosis linked to gene variants BobbyB ALS 0 07-30-2007 08:42 AM
Testosterone May Help Men With Multiple Sclerosis BobbyB ALS News & Research 0 07-16-2007 07:37 AM


All times are GMT -5. The time now is 01:41 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.