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Old 02-08-2008, 06:20 PM #1
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Sorry I'm weighing in late on this one!

I saw this report and I had to ask WHY it would come out now. There's a lot of theories floating around out there, none proven, so I will leave that alone.

I guess my thoughts would be, maybe they put out a 2 patient report in their letter to warn other doctors to be watchful of this in the future.

My thoughts also wonder about previous history on both patients. They obviously had the moles before. What were they on for drugs before Tysabri? What other drugs or risk factors did they have. Is it possible that there were changes before and they just noted it? Not enough information and we more than likely will not get that information due to privacy laws.

I talked to my neuro yesterday during my appointment, about this, and he feels like I do, that people on Tysabri need to be watchful of any changes that are abnormal, that last more than 24 hours, etc, sort of like relapses, and call if that happens.

I have a mole map. I have had some family die from melanoma. They all ignored moles that went bad. I get mine examined at every physical and examine them myself regularly. That's how I found out that mine were shrinking.

I don't think this is anything to worry about right now, unless more information comes along.
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Old 02-08-2008, 09:26 PM #2
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Originally Posted by Riverwild View Post
I don't think this is anything to worry about right now, unless more information comes along.
After more reading and asking questions, I have to agree with you on this. Unless more info comes out, I'm not adding to my worries!

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Old 02-08-2008, 11:09 PM #3
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I had 3 moles appear out of nowhere right before my attack from you know where! while I was so sick, I watched one on my tummy grow....I'm talking a few months time here...when it got a hint of red around the outside, I called the derm....she removed it....turned out to be premelanoma....the other two have grown some, and I will have them removed as well, even though they aren't doing exactly the same thing.

She told me at the time that the drugs I am on are notorious for moles growing bad....at the time I was on Rebif....
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Old 02-09-2008, 07:06 AM #4
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IShe told me at the time that the drugs I am on are notorious for moles growing bad....at the time I was on Rebif....
not sure where she gets that from, if you look in the Mimms, (the drug information bible that the medical community uses) there is no mention of a link between melanoma and Rebif. so i can only think that its something she ahs seen amogst her patients rather than an accepted drug reaction. infact when i did a search i found one clinical trial that had been looking at the idea of using rebif to treat patients with recurrent melanoma!!
I live in australia, we have the highest incidence of melanoma in the world so you'd think it there were a link between the drugs and melanoma we would have been told- i see my neuro on monday and i will ask him about it but my thoughts at the moment is that all moles etc need to be monitored and checked if they change regardless of whether we are on DMD's.
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