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#1 | |||
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Magnate
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Sorry I'm weighing in late on this one!
I saw this report and I had to ask WHY it would come out now. There's a lot of theories floating around out there, none proven, so I will leave that alone. I guess my thoughts would be, maybe they put out a 2 patient report in their letter to warn other doctors to be watchful of this in the future. My thoughts also wonder about previous history on both patients. They obviously had the moles before. What were they on for drugs before Tysabri? What other drugs or risk factors did they have. Is it possible that there were changes before and they just noted it? Not enough information and we more than likely will not get that information due to privacy laws. I talked to my neuro yesterday during my appointment, about this, and he feels like I do, that people on Tysabri need to be watchful of any changes that are abnormal, that last more than 24 hours, etc, sort of like relapses, and call if that happens. I have a mole map. I have had some family die from melanoma. They all ignored moles that went bad. I get mine examined at every physical and examine them myself regularly. That's how I found out that mine were shrinking. I don't think this is anything to worry about right now, unless more information comes along.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | Jodylee (02-09-2008), tovaxin_lab_rat (02-08-2008) |
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#2 | |||
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Member
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Marcia . . |
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#3 | |||
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Senior Member
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I had 3 moles appear out of nowhere right before my attack from you know where! while I was so sick, I watched one on my tummy grow....I'm talking a few months time here...when it got a hint of red around the outside, I called the derm....she removed it....turned out to be premelanoma....the other two have grown some, and I will have them removed as well, even though they aren't doing exactly the same thing.
She told me at the time that the drugs I am on are notorious for moles growing bad....at the time I was on Rebif.... |
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#4 | ||
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Junior Member
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I live in australia, we have the highest incidence of melanoma in the world so you'd think it there were a link between the drugs and melanoma we would have been told- i see my neuro on monday and i will ask him about it but my thoughts at the moment is that all moles etc need to be monitored and checked if they change regardless of whether we are on DMD's. |
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