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Old 02-07-2008, 07:39 PM #21
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Kay, you have to decide for yourself to try this alone. Jim's doc says nothing is an addiction if it is doing good to your body and not a recreational fix.

Maybe you could get on the phone with someone and try it. If you pass out then the person on the phone will know to come by? lol
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Old 02-07-2008, 08:03 PM #22
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MJ can be a habitual addiction, but not physical. I wouldn't toke too much tho Oh, and have some mini wheats for your munchies
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Old 02-07-2008, 10:43 PM #23
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Kay, I'm sorry your dealing with so much pain.

Pain can certainly take you places you thought you would never go. I needed to know if MJ would be a viable option for the pain. I now know it's not and I no longer like feeling high. I did feel loopy along with laughing at absolutely nothing and I was by myself It was kinda funny. But, if it's not going to help with the pain I'm not interested.

Unlike you I was not concerned about addiction. I used it alot in my teens but when I decided being high was not how I wanted to live my life I stopped, without a problem. I am more concerned about addiction to prescription drugs.

I didn't do it bravely (IMO) I was simply desperate to find pain relief - the same way I think you may be feeling. Trying MJ to see if you can get some relief from pain does not make you a bad person nor does it mean you will become addicted.

To try MJ for pain or not - Kay, do what you need to do for yourself and your sanity

If your concerned about how you will react just make sure you have someone with you who you can trust.




Quote:
Originally Posted by FlyFishin Momma View Post
okay snoops...lets have a convo about this MJ business okay..........
This past 2 weeks have been probably the worst for pain in my MS lifetime........I am misserable and making all around me just as bad.........
I have tried all the drugs in the med cabnit and still suffering everyday to the point of insanity. (the b word comes to mind)

Now, I happen to have in my nightstand, 2 homegrown wacky smokes..........they have been there since last summer. A family member got them for me.........I have not used them....but been thinking of trying it.

I will not play innocent here. I smoked it some as a teen and younger adult. Not often but some. The last time was about 14 years ago....(I remember that my dd was 2 and thought momma was losing her marbles lol)

I was sitting on the floor leaning against the foot of my then Husbands recliner. I took 2 hits as it was passed around the room. I woke up there covered up the next morning.
XDH said...."you giggled, then slid down the recliner and passed out" huummm did that mean it was good stuff or was I just wore out, or does it just not mix well with me? I dont know but...........

I was not in the pain then that I am now. I am desperate. I am off of my DMD, off the cymbalta and only taking a bp med and my zanaflex. I have ultram and I take them as needed. but they only take the edge off. I have vicodine, they work but only for maybe an hour...then it starts comming back on. I wont take both of those two together.....

The MJ is just sitting there....waiting.........I dont wanna feel loopy or crazy headed. Lord knows I dont need munchie attacks, my colon is on overload right now as it is with spasams,I have spasticity kickin my rear...actually its in the groin and in my left side below rib cage on the side along with my rt hip area and my shoulders and calf in the left leg but the total worst is the neck pain and the never ending headaches.........I am a mess.........

I wanna try it.........I was wondering if you had.I was glad to see this post.........(i think.........)...lol.
Since you did it so bravley......I just dont want an addiction...and I am afraid if it "works" for me....that it may become just that.........
What to do?What to do?
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Old 02-07-2008, 10:48 PM #24
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Quote:
Originally Posted by Debbie D View Post
Okay, this is how stupidly naive I am...you need to take into consideration that I'm from the Chicago area...
When i first saw the initials MJ, I thought, "Michael Jordan? How could he help with pain?"
So sorry you're having so much trouble with pain...is it the neuropathic kind, the zingers? They take my breath away. They were just about gone when I was on prednisone, but are letting themselves be felt once again.
Again, so sorry...hope you can find relief soon...
Debbie, MJ = Marijana (SP?).

Yes, it appears the pain is neuropathic but it's difficult for me to explain how it feels. My neuro says it's sensory.
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Old 02-07-2008, 11:34 PM #25
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Quote:
Originally Posted by Snoopy View Post
Cherie, I had about 7 or 8 hits - I'm fine.
I'm sure you are fine, Snoopy.

I can't do more then 2 hits or I'm a gonner!!

Cherie
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Old 02-08-2008, 12:02 AM #26
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Quote:
Originally Posted by Snoopy View Post

Yes, it appears the pain is neuropathic but it's difficult for me to explain how it feels. My neuro says it's sensory.
Ya know I call this my spasticity but in all honesty it feels like tiny jerking spasams in some areas and then other areas feels like just a deep aching muscle...like in my shoulders its an ache but in my waist area and my groin area its sharp short twinges of pain...a spasam. I get them in my bladder and colon too.......and even having them in my wrists when I attempt tp pick up a glass of tea or something or heaven forbid try to write with a pen right now....the pen will spaz right out from my fingers....but its really in my wrist...

and the neck thing is a constant deep radiating pain that makes my head hurt on that side....IT IS A CONSTAINT... always 24/7 have a headache........

it is making me a not so likable person......(i am not happy about that cuz that is not who I am)

Snoopy is your pain anything like that?
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Old 02-08-2008, 12:23 AM #27
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Oh sweet Kay, you are in pain. I can tell by your posts. Poor thing.

Snoopy - Sorry it didn't work for you. I agree about the Cymbalta. I was on it for 3 days and was pain free for 3 days. However, the Cymbalta messed with my head. I am normally a passive compassionate person and I was having AGGRESSIVE thoughts. Scared the cr*p out of me. No more of that stuff for me. I wish the could find what it is in that AD that works on the pain receptors in our brains and then isolate it so we can just have that portion.

It sounds really strange but for me taking Epsom salt baths helps so much with the pain. Then I have DDs or DBF gently massage my muscles (mostly my back - touching my legs can sometimes cause the spasms I'm trying get rid of). Then we ice them down. It helps quite a bit. It is a nightly ritual when the pain is real bad.
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Old 02-08-2008, 01:04 AM #28
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Snoop and FFM

If misery loves company, I am right there with you. The past year has been unbearable for me, particularly the last six months.

I swear I can take the pain anywhere but if these feet don't quit hurting soon, I am either going to kill someone or jump off of a bridge.

I am taking Vicodin ES, Ultram, Celebrex, Robaxin and Neurontin and yet, I could scream. All of those have been suppemented three separate times with Prednisone, Elavil and Klonopin.

My new pain management specialist is taking me off of the Vicodin and Ultram and prescribing Kadian. I start it on Saturday. If I get a minute of relief a day, I'll be happy.

Anyway, due to time limitations, I haven't been able to read the threads pertaining to this so forgive me if it has already been mentioned. But my doctor has high hopes for the Kadian working. I thought that might be a suggestion.

Also, FFM, you can take Vicodin and Ultram simultaneously. I have been doing it for years. The Ultram is a lower dose

I hope all of us in pain find a way out. I would just like my life back and not be thinking of it all of the time. I'd be sleeping now if my feet would just quit. Six o'clock comes early.......
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Old 02-08-2008, 03:15 AM #29
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Carolina hun........Your by far worse off then me....I am not even as bad as you and snoops....I feel for you both though.........

I fel like such a whimp for crabbing about the pain because I know I have great compared to so many.

I, like you, am up in the middle of the night because PAIN will not let me sleep.
I had pain in the bottoms of me feet on both mon and tue but it has gone from there for now....I just figured my back must be out or something I didnt really relize it could be spasticity there...........
I am putting a call into the neuro tomorrow............something has got to give.....
this evening the feeding of the animals took me nearly 30 minutes. I usually have it knocked out in about 10 minutes......but between rubbing my arm, stopping for a spaz in the leg or just moving in slow motion I was actually ticked off because I was dragging along.........stressin out = more pain.........

I am going to go take the two meds together and see if I can sleep........
Thanks ya'll for the advice.........

prayin for a better tomorrow for everyone!!!!!!!!!!
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Old 02-08-2008, 04:10 AM #30
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Is it something in the air?

I've got weird stuff going on tonight.

My right knee (the one I injured a few weeks ago) was really stiff this morning, and kept wanting to go out on me...

A few minutes ago, I got up to go use the potty, and the left leg hurt so bad for about 10 seconds that I couldnt put weight on it and I actually fell over onto the bed. (thankfully I missed the knitting needles, that would not have been pretty) Limped into the bathroom, came back and my leg was fine, didnt have the weird shooting pain going up it that I had a few minutes before.

and tonight, some invisible person keeps stabbing me in the shoulders with a weird shooting pain....had that same shooting pain go across my right hip and stomach last night while walking across a room. I'm guessing these are some spasticity sensations that are a bit more intense than ones I've had before.

and, I cant sleep. The Evil Insomnia Troll must have been here earlier and spiked my non-caffeine Diet Coke with some caffeine or something. My brain is refusing to shut down, even tho the rest of my body is begging it to.

Oh, and the Insomnia Troll's cousin, the Vertigo Troll was here last night. He's apparently got some special remote control hooked up to my 8th cranial nerve and is randomly flipping the dizzy switch to "on", and setting the dizzy settings to just below "medium". At least he's not just sitting there turning it on and off repeatedly. He's only hit me twice with that. I dont think it's been 24hrs yet tho...and the vertigo may be related to the lack of sleep.

I cant wait to see the regular doctor tomorrow. I'm asking for some Ambien or something similar...and asking him to check with the neuro to see if there might be a possibility of some steroids in my future (dont really want to do that tho, so if they can find me an anti-vertigo med that works better than meclizine, that might help)

I'm glad I'm just getting the inconveiniet (argh, I cant spell that word!) relatively minor annoyances and not anything big and scary (yet) But this is really annoying.

I guess there's a lot of suckage in the forum this week for a lot of people symptom-wise.

It's got to be something in the air, or the water, or maybe it's sunspots... There's some mighty powerful MS suckage going around this week.
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