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Old 02-07-2008, 02:27 PM #1
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Originally Posted by greenjeans View Post
Thanks snoopy...so you are saying that the high protein needs to include these o-bands? Could this be an indicator of the beginning of MS?

I'll go read the link you gave me...thanks!!!
Well not everyone that has MS has o-bands in the CSF.
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Old 02-07-2008, 02:31 PM #2
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Well not everyone that has MS has o-bands in the CSF.
That's true. I believe 10 to 15 percent diagnosed with MS have had negative LPs. The LP is just one more diagnostic tool to hopefully find answers to a patients symptoms.
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Old 02-07-2008, 02:38 PM #3
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That's true. I believe 10 to 15 percent diagnosed with MS have had negative LPs. The LP is just one more diagnostic tool to hopefully find answers to a patients symptoms.
I think I found 5%....but anyway....if you read the last link...seems they believe that higher levels of protein are cause for concern that the patient has RRMS. Which is what I 'thought' I had......

Oh for heavens sake!!!!!!!!!

Okay, now lets talk about MRI's....Where do lesions BELONG? I'll go get my test results and look over where mine is....

THANKS SNOOPY!!
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Old 02-07-2008, 02:39 PM #4
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Here's the question I'd be asking: Can you have no O bands, but high protien with ms?

Or does high protien alone (no O bands) point to something else?

Either way, I'm not too happy with your neuro not telling you that info and passing to the other docs.

BTW, my lp showed no O bands and had normal protien levels. That's why I wondered if there would need to be both. I always thought there kind of would.

Good luck. And let us know.
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Old 02-07-2008, 02:40 PM #5
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Originally Posted by Snoopy View Post
That's true. I believe 10 to 15 percent diagnosed with MS have had negative LPs. The LP is just one more diagnostic tool to hopefully find answers to a patients symptoms.
My ears were burning... I don't remember much about my LP, unfortunately. I need to write this stuff down. Since it was the least interesting of my tests (whole bunch of numbers!) I put it in a drawer and forgot about it.

I don't remember who told me this, but somebody said that if you do have o-bands, it's one o-band per virus that's sneaked past the blood-brain barrier. They'll show up when you're having an inflammatory attack, and subside when you're in remission.
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Old 02-07-2008, 08:16 PM #6
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thats what I said when my neuro told me that I have 4 o bands,and thats to high for it to be ms. what the He77 is that suppose to mean. I got to exlpaination from her. But on a tread on msw,alot of ppl have 4 O bands,and dx with ms.
I sware too that she is tring to make me nuts!!!!
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Old 02-07-2008, 02:29 PM #7
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More that causes alarm for me

http://jnnp.bmj.com/cgi/content/abstract/64/3/402


I just left a message with my Neuro's Nurse....getting to the bottom of this!

Just called the hospital to email my test results....
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