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Old 02-07-2008, 03:03 PM #1
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Hi J! I was dx with a negative lp (I guess he meant for o-bands?) but my neuro did say that I had abnormally high protein levels.

I have no idea what any of what I just typed actually means though!!
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Old 02-07-2008, 03:19 PM #2
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I can't believe all this!!!

DH I think is worried that I'm back on the 'band wagon'.....

What do you all think about a second opinion from my Optho/Neuro?

PS: WE HAVE NO MS SPECIALISTS IN ALASKA!
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Old 02-07-2008, 03:32 PM #3
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Quote:
Originally Posted by greenjeans View Post
I can't believe all this!!!

DH I think is worried that I'm back on the 'band wagon'.....

What do you all think about a second opinion from my Optho/Neuro?

PS: WE HAVE NO MS SPECIALISTS IN ALASKA!
I think you should get an 2nd opinion.
What about everything else on the LP?
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Old 02-07-2008, 04:01 PM #4
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Quote:
Originally Posted by greenjeans View Post
I can't believe all this!!!

DH I think is worried that I'm back on the 'band wagon'.....

What do you all think about a second opinion from my Optho/Neuro?

PS: WE HAVE NO MS SPECIALISTS IN ALASKA!

I'd go for it. 2nd opinions, 3rds, 4ths, whatever it takes. Go for it. I'd HAVE to know, you know?

Now deep breath, okay?

If the protien isn't high due to ms, I'd still wnat to know what that was about. I'd need answers which ever way.


Re the lesion, I am skeptic whenever someone says they are not typical - so what is typical of this atypical disease? 2 lesions warrent follow up, IMHO.
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Old 02-07-2008, 04:05 PM #5
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Thanks Brain,
I called my Optho/Neuro's office and he is in surgery until this afternoon, so they want me to get him my LP results, and if he is comfortable with it, they will have me come in for a second opinion.

I think at minimum, this is required, now that I am connecting this....

They say not to dx yourself (and I won't) but really....they would miss things if it weren't for me giving a S about myself
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Old 02-07-2008, 04:12 PM #6
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Quote:
Originally Posted by greenjeans View Post


They say not to dx yourself (and I won't) but really....they would miss things if it weren't for me giving a S about myself

Oh I hear you, What is it with MS that Dr.'s need you to have 20 lesion (all in the right place), + LP and be in a full blown flare before a Dr. can openly say "You have MS"?

I don't understand how something, anything can be off on any test and the Dr doesn't feel the like he/she should tell you what that could mean.
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Old 02-07-2008, 04:31 PM #7
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momx7, I hear ya.

I suspect it will be tomorrow before I have my LP results, unless I go get them... is what I'm thinking

I'll keep you all posted on this new development. It will probably turn out to be nothing But we shall see.....

Anymore folks with knowledge are free to add to whats already been said, or offer opinions....
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Old 02-07-2008, 05:24 PM #8
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Hey Joelle,
I sent you a PM

Talk to ya later
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Old 02-07-2008, 03:20 PM #9
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I know that when my DS goes for his Renal (kidney) check up, they check to make sure his protein levels aren't elevated. Guess there could be many causes.. But, higher protein levels in the urine could indicate something amiss w/the kidneys.

Let us know what you find out, K???
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