FAQ/Help |
Calendar |
Search |
Today's Posts |
|
![]() |
#1 | ||
|
|||
Junior Member
|
As the others have said a lot of what you describe fits the description of siymptoms of anxiety and depression PLUS a whole lot of other medical condtions. The other thing is that many of them are subjective, there is no hard and fast way to test for them or to quatify them, Dr's are often loathe to amke a dx based soley on such subjective kind of complaints, thats why they are looking for the more objective signs such as LP, evidence of ON etc. Also if you do have MS, remeber that over 85% of us have RRMS, so symptoms/signs can be harf to find unless you are in an active relapse- its a bit like having an intermittent fault in an appliance ( sorry for the analogy) but the appliance acts faulty until the repair turns up then its fine- it can be very frustrating - but eventually the problem will declair itself. When i first started having symtoms they were thinking of an autoimmune problem. possibly lupus but could not give me a dx so i too was in limbo- i was told that very same line- Whatever it is, it will eventually become more evident- its toughm but you need to be patient. The dr's will not be helping you one bit if they rush in giving you a dx that is not correct. as the other have also said, any chronic disease tends to have an emotional content such as anxiety depression, so it would pay to address that rather than try to shrug it off - you would not be human if this was not having some effects on your anxiety levles
|
||
![]() |
![]() |
"Thanks for this!" says: | momXseven (02-08-2008) |
![]() |
#2 | ||
|
|||
Member
|
I am sorry for what you are going through. I do agree that having a neuropsych evaluation would be helpful. That testing will show if any of your sx are related to an underlying psychological disorder. Also, it can show if you do have true cog problems that are similar to those found in MS.
You sound a lot like I did four years ago. I know it is scary to feel horrible, and to not know why. I went to doctor after doctor looking for answers. For me, it took more than a half dozen doctors before I found one who would help me. You may have heard my story before, but I'll share it again just in case. I have four lesions in my brain, abnormal neuropsych eval (profound losses in short term memory, information processing, etc), abnormal urodynamics testing showing neurogenic bladder, ENG showing Central Nervous system dysfunction, a history of several attacks, and an abnormal neuro exam. I have all of this and still don't have a dx. Three years ago, I would have been(was) a basket case. But, now I'm not. What has made the difference, and this is what I think all limboers need, is having a doctor who cares. My current neuro is willing to treat my sx, runs tests when appropriate, and sees me every 3 to 6 months. For me, once I knew I had a doctor who believed in me, and wasn't put off by the hard to dx sx I could let some of that "gotta know now" go. I realized that I could not make them dx me. I could only try and get the best medical care possible. You have to advocate for yourself. My current neuro says I either have MS (in fact if my last MRI would have shown one more lesion she would have made the dx), a post viral illness(encephalomyelitis), or problems stemming from my copper deficiency (she's the first doctor to check for that). Hang in there. Don't give up advocating for yourself. Sometimes it takes a team of doctors to get to the bottom of things too (I have a urologist, Rheumatologist, Neurologist, and an ENT). Oh, also, it might not be a bad idea to have a Physical and occupational therapy evaluation. Sometimes they pick up on things that the neuros don't in their (sometimes quick) office exams. Good luck! |
||
![]() |
![]() |
"Thanks for this!" says: | momXseven (02-08-2008) |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Venting | Bipolar Disorder | |||
VENTING! just venting | Reflex Sympathetic Dystrophy (RSD and CRPS) |