Reply
 
Thread Tools Display Modes
Old 02-08-2008, 10:07 AM #1
momXseven's Avatar
momXseven momXseven is offline
Senior Member
 
Join Date: Jan 2008
Location: Texas
Posts: 1,045
15 yr Member
momXseven momXseven is offline
Senior Member
momXseven's Avatar
 
Join Date: Jan 2008
Location: Texas
Posts: 1,045
15 yr Member
Default

OMG, I want to say I can't believe he did this (talking with you DH), but I can. My neuro seams like the type that would do this.
I can't believe that "Shari" decided her self to send you to the ER and never even tell your Dr., That's NO RIGHT.

I have had times when I wasn't able to do the finger to the nose test and still was walking that day just fine, and you were on Lorcet at the time.

If this were me I would give him one more chance but than if your gut says it's not going to get any better with this Dr. than I would fine a new Dr.

Try not to worry over this too much, whats done is done.

And I'm with you on the hating Dr.'s thing, this is why I haven't seen one in about 2 years until all this crap started to get too much for me to deal with.
__________________
Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11).
.


DX with Fibromyalgia, 1998
DX with MCS (Multiple Chemical Sensitivity), June 2008
DX with Food Allergies, wheat, sesame, fresh pineapple


.
momXseven is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Old 02-08-2008, 10:34 AM #2
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

My answer (rage) would be quite long, but I'm not feeling so good (and my thoughts are disjointed, sorry) so I'll try to keep it short. Lucky him!

Firstly, as you know, there are people who exaggerate/over-dramatize things, and some people do have a low tolerance to change or pain, etc. Hence, my advice would not be the same for everyone, . . . but in your case, he is wrong.

Besides going outside patient confidentiality, which he has clearly done, he has not treated you personally with respect and trust (does he hate women or something?). That would be the crux of the issue for me, and I would not want to keep seeing someone who felt that way about me.

He hasn't done his homework on your background/test results, and it seems he hasn't done the proper testing to determine if what you are saying could be true. A spinal MRI is what's necessary before he could even consider a conclusion that you are exaggerating (even though my doc and neuro would absolutely take what I say at face value)!

I'm wondering if perhaps he has you confused with someone else? He might have had a conclusion in his mind already, based on "someone else" entirely, or on your past visits, and his bias about the nose-touching test just "proved it" in his mind. Doesn't really matter why he did it though . . .

Frankly, I wouldn't even waste my breath on someone like him. He is not worth your emotional energy, and believe me, this kind of chit is harder on you then finding someone new.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Old 02-08-2008, 10:55 AM #3
suzyqz_2007's Avatar
suzyqz_2007 suzyqz_2007 is offline
Member
 
Join Date: Jan 2008
Location: Houston, Texas
Posts: 643
15 yr Member
suzyqz_2007 suzyqz_2007 is offline
Member
suzyqz_2007's Avatar
 
Join Date: Jan 2008
Location: Houston, Texas
Posts: 643
15 yr Member
Default

Wow! I hate that you had a bad experience with a doctor you are supposed to trust and count on. I would be so mad and I certainly wouldn't give him a second chance! But that is me. I would have never left the parking lot, I'd be back up in that office to confront him about discussing my situation without my permission (even if it was with dh). I would also be concerned about what kind of treatment he is giving me if he feels I am exaggerating or possibly has me confused with someone else. If I couldn't trust him to keep my personal information straight and private then I'm not sure that I could trust him taking care of me. I'm all for giving someone a second chance, but when it comes to something as important as my health and well being, well there are no second chances. Like I said that's just me though.

I sincerly hope that everything works out for you and all goes well with your TY treatment.

Susan
__________________

.


Dx'd RRMS July 2007


suzyqz_2007 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Old 02-08-2008, 10:57 AM #4
Jodylee's Avatar
Jodylee Jodylee is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,365
15 yr Member
Jodylee Jodylee is offline
Senior Member
Jodylee's Avatar
 
Join Date: Jan 2008
Posts: 1,365
15 yr Member
Default

Quote:
Originally Posted by lady_express_44 View Post
My answer (rage) would be quite long, but I'm not feeling so good (and my thoughts are disjointed, sorry) so I'll try to keep it short. Lucky him!

Firstly, as you know, there are people who exaggerate/over-dramatize things, and some people do have a low tolerance to change or pain, etc. Hence, my advice would not be the same for everyone, . . . but in your case, he is wrong.

Besides going outside patient confidentiality, which he has clearly done, he has not treated you personally with respect and trust (does he hate women or something?). That would be the crux of the issue for me, and I would not want to keep seeing someone who felt that way about me.

He hasn't done his homework on your background/test results, and it seems he hasn't done the proper testing to determine if what you are saying could be true. A spinal MRI is what's necessary before he could even consider a conclusion that you are exaggerating (even though my doc and neuro would absolutely take what I say at face value)!

I'm wondering if perhaps he has you confused with someone else? He might have had a conclusion in his mind already, based on "someone else" entirely, or on your past visits, and his bias about the nose-touching test just "proved it" in his mind. Doesn't really matter why he did it though . . .

Frankly, I wouldn't even waste my breath on someone like him. He is not worth your emotional energy, and believe me, this kind of chit is harder on you then finding someone new.

Cherie
Thanks, Cherie.

Actually, LOL, my dh waited to tell me what the doc said until we were half-way home. He KNEW what I would've done. Logically, I know you are right. I have so much other stuff going on in my life (my mom is having some major health problems right now) that I seriously don't know if I have the energy or inclination to look for a new neuro right now. I'll be going to Pittsburgh from Florida for an extended period between neuro visits.

I have quite a temper when I'm pushed. He has definitely pushed me. I will talk with (AT!) him on my next visit. If I don't feel comfortable after that; I will be looking for a new neuro so fast his head will be spinning.

Thanks so much again.
__________________
Multiple Sclerosis-Dx May 2007

.
Jodylee is offline   Reply With QuoteReply With Quote
Old 02-08-2008, 11:49 AM #5
sugarboo sugarboo is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,516
15 yr Member
sugarboo sugarboo is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,516
15 yr Member
Default









Unbelievable Joelle! I'm speechless!!! WTH???

I'd love to be a fly on the wall and watch you in action on this one!

Sitting on pins and needles to hear the update of this story!!

Next week on "Survivor"!!!
__________________

.
Wisdom to the soul is what health is to the body
sugarboo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Old 02-08-2008, 12:34 PM #6
greta greta is offline
Member
 
Join Date: May 2007
Posts: 713
15 yr Member
greta greta is offline
Member
 
Join Date: May 2007
Posts: 713
15 yr Member
Default

If it were me, I would calm down a bit and then write a letter to the neuro, explaining that in the future, you expect to be treated with respect, and not like a child. If he feels you are exagerating, then he needs to discuss it with you. His conduct was highly inappropriate.

I would find that new neuro so you can walk away from this one ASAP. You need someone who will work with you and not against you.
greta is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Old 02-08-2008, 01:56 PM #7
HSPCraig's Avatar
HSPCraig HSPCraig is offline
Member
 
Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
HSPCraig HSPCraig is offline
Member
HSPCraig's Avatar
 
Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
Default

I would give the guy ONE (1) more chance to explain himself and the actions of "Sharie" on HIS staff. Who did she consult with anyway.

He is way out of line and violated patient confidentiality by going to your husband privately. (Unless you listed him on your neuro's documents as one to share information.)

My gut feeling is to find a new neuro especially before you start Ty. Just to make sure everyone is on the same page.

There is no excuse for what he and his staff have done. Also, why didn't the ER call him when you came in for treatment? You did tell them he referred you to the ER, correct? You could have been having a heart attack based on your symptoms. As we all know, symptoms for women are different then men.

I'm ticked on so many levels about this. Cheri hit the nail on the head!
__________________
Craig Mattice
"Live Like You Mean It!"

.


Dx'd 12/00 w/RRMS
Dx'd 05/01 w/SPMS
03/05 Rescinded MS Dx Neuro thinks something else
03/06 New Dx of Hereditary Spastic Paraplegia (HSP)
Rare deteriorating motor neuron disease. No cure. No Treatments.
Only 20,000 Dx'd patients in US
HSPCraig is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Old 02-08-2008, 02:08 PM #8
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default

I understand that with everything that is going on right now that you also do not have to find a new neuro. I also understand that you do not have to wait on starting the tysabri. So I guess I would also write a letter as suggested by Greta. Then if you are not satisfied with his response, you can look for a new neuro when things calm down. I think sometimes it is easier to be logical and express your feelings/thought in written form.

Oh -- I also wanted to add that your neuro sounds like a complete *#*!
barb02 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Old 02-08-2008, 02:06 PM #9
FlyFishin Momma's Avatar
FlyFishin Momma FlyFishin Momma is offline
Member
 
Join Date: May 2007
Posts: 576
15 yr Member
FlyFishin Momma FlyFishin Momma is offline
Member
FlyFishin Momma's Avatar
 
Join Date: May 2007
Posts: 576
15 yr Member
Default

O-M-G GIRL.....

Did ya get the shouting on that? I dont even know what to say....what a jerk......I dropped my first neuro over carp like that. He had the nerve to look at my dh and ask him "Do you know how much the DMD's cost?" Tim said yes the he tells Tim we probably couldnt afford them. This was within the first few minutes of our very first meeting of the man...
HOW THE HE77 WOULD HE KNOW?

I just wont see a dr who has no respect for his job.....and that job would be to take care of me and my best intrests in order to improve my health....NOT STRESS ME OUT AND MAKE ME WANNA CRY OR KILL HIM.....

KICK THAT JERK TO THE CURB.....makes ya wonder what else he
1) is saying behind your back
2)really thinks about your illness
3) is really going to do to hlep you get better.....

THAT IS NOT A SECURE FEELING TO HAVE ABOUT YOUR DR............

Are there other drs in the area you can see? I would so totally be checking that out.
That first neuro I dumped was 1 1/2 hours from home for me each way.
I switched to a neuro whom was 3 hours away each way just to get a good new neuro!
It is well worth the drive for me....knowing the quality of care and treatment I get there now......

Bless your heart...and like you said also...thank God your dh is a good guy.....!!!!!!!!!

Craig....even if her dhs name was on the release info to list....SHE WAS SITTING RIGHT THERE. He should have discussed with her in a more professional way his thoughts and concerns...not going to her dh like she was a nut case and couldnt be told that....

I say again ...O-M-G!

Keep us posted and if ya ever need to talk....you know how to find me lol....
FlyFishin Momma is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Old 02-08-2008, 03:42 PM #10
HSPCraig's Avatar
HSPCraig HSPCraig is offline
Member
 
Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
HSPCraig HSPCraig is offline
Member
HSPCraig's Avatar
 
Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
Default

[QUOTE=FlyFishin Momma;Craig....even if her dhs name was on the release info to list....SHE WAS SITTING RIGHT THERE. He should have discussed with her in a more professional way his thoughts and concerns...not going to her dh like she was a nut case and couldnt be told that....

I say again ...O-M-G!

Keep us posted and if ya ever need to talk....you know how to find me lol....[/QUOTE]

You are so right about this. Heck! She WAS sitting right there and SHE is the patient. What did the neuro think, DH "wasn't" going to discuss this conversation with her?

Give me a brake!
__________________
Craig Mattice
"Live Like You Mean It!"

.


Dx'd 12/00 w/RRMS
Dx'd 05/01 w/SPMS
03/05 Rescinded MS Dx Neuro thinks something else
03/06 New Dx of Hereditary Spastic Paraplegia (HSP)
Rare deteriorating motor neuron disease. No cure. No Treatments.
Only 20,000 Dx'd patients in US
HSPCraig is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jodylee (02-08-2008)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Finger to nose test??? Important Jodylee Multiple Sclerosis 23 02-08-2008 02:19 PM
I wonder #53..(guys old thread was too long) CoolAngel26 Survivors of Suicide 31 09-28-2007 12:39 PM
My finger still hasn't healed. dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 4 08-09-2007 07:34 PM
OT -My own gigantic and very long ticked off thread Doody Survivors of Suicide 9 12-21-2006 02:08 PM
cold finger kaskyron General Health Conditions & Rare Disorders 1 12-13-2006 11:25 AM


All times are GMT -5. The time now is 07:46 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.