I am in ms limbo, and my other dxs are not immune in nature. That said, I'll add this....

I think treating an immune disorder's sx and not the root of the problem is like taking a pain pill for a broken leg and not setting the bone.

Problem is how do you treat an immune disorder?

My theory is, take decent care of the whole body - diet, exercise, blah blah blah lol. And try not to get sick ( colds, flu, etc) because those are the things that ramp up immune responses, which in turn exacerbate the immune diseases.

does that make sense?

And no, I don't put all my eggs in the neuro's basket. I have a wonderful PCP/internist and pain doc too. I would seek council with a nutrinionalist if such were available - but then I'd need a cook too.

If I read GIGI correctly, I think that's her point. The available treatments for MS don't even really treat the root of the problem. They know what happens but not why.

I think it's an interesting approach to at least explore but I sure agree with you about the real riddle! I wish someone WOULD figure out how to treat immune disorders and cure us from attacking ourselves!

Wow, I'm excited for you! Tell us what all this is like and how it goes....maybe we should all see someone like this!

Good luck!

i have fibro and ms.
so far i've stuck with my pcp and neuro.

but, i think you've got a great idea.
please let us know what happens.

I was dx with IBD (Ulcerative Colitis) in 1986, and MS in 1991. When I was dx with MS, one of the first things I looked at was the possible connection between these two conditions.

They have been looking at this for a while now:

"A link between IBD and multiple sclerosis has been suspected for some time, but earlier studies have been conflicting. Powerful new drugs used to treat IBD, which block inflammation-causing tumor necrosis factor (TNF -- a part of the immune system), are also suspected of causing multiple sclerosis.

Medications that block TNF like Remicade and Humira are now required to contain labels warning of a possible link to multiple sclerosis and similar conditions. But all agree that their role in the disease is far from clear."

http://www.webmd.com/ibd-crohns-dise...iple-sclerosis

I have used a drug called Sulfasalazine to control the UC attacks, but I haven't been able to figure out if it fits in this class of drugs.

The question remains though, "what came first, the chicken or the egg?" They predict that the trigger for MS occurs in our very early years, so perhaps I actually had MS before UC.

Cherie