Well up the River from Riverwild I have a Neuro appointmet today and am also a little worried. Not for the same reasons as RW but for my own.

I know I am going to go in there and he is going to ask me how I am feeling, I will tell him and he will look at me and say I am sorry but your test all come back fine and there is nothing wrong with you, no medical explanation on your troubles. Are you sure you feel these sx?

I am to the point I don't even want to go but know I have too! I just am tired of being told "nope I can't tell you anything that your insurance company will take as a dx".

Thanks for listening and letting me rant!

Venting is always good. Hope the appointment goes ok. Let us know how it works out.

I'm so sorry - I wish they could give you a dx of something. Not saying that I hope you have MS or anything like that but a dx can at least confirm to you that it's not all "in your head" or whatever the doctor is telling you.

These appointments are stressful enough even when you DO have a dx - I will say a prayer for you that things go well and that you can get some relief.

I didn't have to go through the "limbo" experience but I can imagine how frustrating that could be. Here's a

Oh my leetle Yabbit,

Here's hoping today is a good day.

While you wait, rant away. You deserve it.


I'll be calling you tonight!

I am right there with you girl.........

and pacing the floor to know how it turns out...........

................waiting for a phone call................
.and praying.

Just wanted to send your way. And let you know I'm thinking of you. Please keep us posted on what he says.

Kim

I tried the line was busy!

I will be waiting! Was going to call last night but, it was to early!


So here is my update!
He did a few test and was quiet and then he said - I am moving you from Possible MS to Probable MS. He said the with L'Hermittes (spelling sorry?) that occurred and some of the newest sx he is moving me up the ladder of Limbo Land. He was very good and explained things and answered all my questions. We took our time and I thought things through.

So the plan - I am going to see him again in April and May he is going to do another full MRI to see if anything has changed. We will keep in contact with each other and if anything changes with me I will let him know ASAP.

Thanks Everyone! I feel better knowing that someone believes me - and truly feels what is wrong with me!

Hello Yeahbut,

Wait, wait!! We are supposed to believe you??!! Hmm...I thought we were here to give support, no matter what...well then, I really do believe you then! I guess I am in a laughing mood this morning.

One of my favorite sayings is "little by little moves a mountain". Often times getting a dx of MS is like moving a mountain isn't it? You are getting closer and hopefully by this spring you will have a dx and will be one your way to getting treated.

Best to you,

Dave

Oh, I'm so glad that the visit went well and you feel that you're begin heard. Although I know you don't want to have MS you DO want to have a dx for whatever it is so that you can move forward with a treatment plan. I'm glad he took time with you and answered all your questions. I like to get the first appointment of the day for that reason - the doctor doesn't have a chance to get sidetracked with other patients and their symptoms and I am the first one he sees that day.

Please keep us posted on the results of the tests.

Hi Char,

I know this is an agonizing process. I only had to go through it for five months, but it was tough! I felt like I had a dark cloud hanging over me, like I needed to be treated for what was going on, but my first neuro didn't know how to diagnose with the modern methods.

I hope you can get a definitive answer so that you can either start treatment if that's your plan, or at least rest knowing what it is so you can tackle it and deal with it in your own ways.