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Old 02-15-2008, 11:09 AM #1
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Thumbs up

That's awesome! I'm going to steal it if that's ok because it explains way better than I can and succinctly too.
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Keith - dx'd 2/07
rebif 3/07 - 12/07
relapse 2/08
copaxone 3/08 - 11/08
relapse 5/08
relapse 10/08
rebif 2/09
Minocycline 6/09
Not a damn thing 7/09
"Where's my Uranium PU36 Explosive Space Immune System Modulator?"

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"Thanks for this!" says:
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Old 02-17-2008, 11:00 AM #2
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Shocked has anyone tried amitripyline? also q's about meds and insurance

i am new to this but have not been sleeping. on wed reg doc subscribed xanax to temporarily get me through this--my sister freaked and said asked for something else...neuro gave me amitripyline for sleeping...but it the online description says it is for depression (have had plenty of that over the past few days).

just got back from the big blood work up at my hmo--7 vials of blood--now feeling very lightheaded! (yuck--but at least open on sunday) another question--do any of you have probs with cost of the meds for ms? my neuro suggested i look at the options and now i have another thing to worry about--what appears to be the super high cost of this maddening disease...
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1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
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started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
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Old 02-18-2008, 11:57 PM #3
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Default Dear Volada,

Quote:
Originally Posted by volada View Post
i am new to this but have not been sleeping. on wed reg doc subscribed xanax to temporarily get me through this--my sister freaked and said asked for something else...neuro gave me amitripyline for sleeping...but it the online description says it is for depression (have had plenty of that over the past few days).

just got back from the big blood work up at my hmo--7 vials of blood--now feeling very lightheaded! (yuck--but at least open on sunday) another question--do any of you have probs with cost of the meds for ms? my neuro suggested i look at the options and now i have another thing to worry about--what appears to be the super high cost of this maddening disease...
I know how you feel about having another job in choosing a med, when your energy is depleted and you are probably still in shock with the dx. I don't know a lot about the cost of different ones. I just got started.
Still waiting to here from my insurance.

Hang in there!
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BETASERON (Quit May 2011)
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volada (02-19-2008)
Old 02-19-2008, 09:56 AM #4
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Default

Quote:
Originally Posted by volada View Post
do any of you have probs with cost of the meds for ms? my neuro suggested i look at the options and now i have another thing to worry about--what appears to be the super high cost of this maddening disease...
yes, especially when I was still working....

I made too much to qualify for gov't aid (Medicaid) and didn't have medical insurance coverage.

my "MISTAKE" was to get Optic Neuritis (and have it in my medical record) just BEFORE I got divorced...

MS turned out to be an "automatic decline" when I tried to get my own insurance.

there are private programs to assist with the DMD costs, ask your doctor, or somebody here probably knows what's available in your area.

that's how I paid for my Betaseron.

and good luck, Volada!
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Old 02-19-2008, 05:25 PM #5
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Ooo i have an hmo--so i should be ok--i think!???

Quote:
Originally Posted by CayoKay View Post
yes, especially when I was still working....

I made too much to qualify for gov't aid (Medicaid) and didn't have medical insurance coverage.

my "MISTAKE" was to get Optic Neuritis (and have it in my medical record) just BEFORE I got divorced...

MS turned out to be an "automatic decline" when I tried to get my own insurance.

there are private programs to assist with the DMD costs, ask your doctor, or somebody here probably knows what's available in your area.

that's how I paid for my Betaseron.

and good luck, Volada!
thanks for your msg and sorry for your troubles!
but i hear what your saying and it is good to know--hopefully this won't lead to divorce for me but i am truly annoyed by my "beloved's" reaction --he seems highly inconvenienced and not really supportive in the way i need...we shall see! having two little kids is hard enough but with ms and working full time-- i sense extra challenges coming on
__________________
1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
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