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Old 02-14-2008, 10:25 AM #1
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I've learned to live WITH the disease rather than to keep fighting it. I find it much more tolerable and I don't mind letting people know how I'm feeling at any particular time. Why hide it? What good is that doing? Be yourself and quit pretending all is well when it is not.
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Dx'd 12/00 w/RRMS
Dx'd 05/01 w/SPMS
03/05 Rescinded MS Dx Neuro thinks something else
03/06 New Dx of Hereditary Spastic Paraplegia (HSP)
Rare deteriorating motor neuron disease. No cure. No Treatments.
Only 20,000 Dx'd patients in US
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Old 02-14-2008, 11:48 AM #2
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Originally Posted by HSPCraig View Post
I've learned to live WITH the disease rather than to keep fighting it. I find it much more tolerable and I don't mind letting people know how I'm feeling at any particular time. Why hide it? What good is that doing? Be yourself and quit pretending all is well when it is not.

I agree. It took me a long time though to learn to stop saying I'm fine when I'm not. If I need a nap I take one, if I'm feeling crappy I deal with it in whatever way I have to. I do my best not to complain, I don't want to sound like a whiner, but I'm not afraid of letting someone know that I don't feel good.
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Old 02-14-2008, 07:09 PM #3
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Originally Posted by HSPCraig View Post
I've learned to live WITH the disease rather than to keep fighting it. I find it much more tolerable and I don't mind letting people know how I'm feeling at any particular time. Why hide it? What good is that doing? Be yourself and quit pretending all is well when it is not.
I'm working on getting where you are! Why are things never as easy as they sound??? It's probably that "attitude adjustment" I seem to recall having ordered... must be in the mail!

Thanks!
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