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Old 02-15-2008, 04:18 PM #21
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Originally Posted by CayoKay View Post

oh, and Finny?

it's ALL completely and totally YOUR fault that I'm now singing Olivia Newton John!

'cause you mentioned listening to your body.



Kay wanders off, muttering under breath and singing:

Let me hear your body talk... your body talk... Let me hear your body talk.

ahhhh!!! I cant get that song out of my head now!! *banging head on desk to make the music change*

Last week I had "Waltzing Matilda" going thru my head all the time. (and I'm American, not Australian) That's actually a cool song and much better than having an Olivia Newton-John song drive me nuts.

I found a new theme song for MSers. It's by Weird Al Yankovich. It's a duet with him and Kate Winslet (yes, THE Kate Winslet from The Titanic...she should stick to acting)


The name of the song is "I Need A Nap".

My boyfriend gave me a copy that he bought off of Napster. He told me that when he heard it, he thought of me.
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Old 02-17-2008, 09:40 AM #22
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Default Erin,
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Originally Posted by Erin524 View Post
I was really tired and exhausted last night.

Wanna guess when I fell asleep last night? During Criminal Minds? No... During the 10:00 news? Nope.

During Hannity & Colmes? Nope..not then either.

During Red Eye? (on FoxNews at 2am CST) Nope.

It was somewhere around 445am...and then I woke up at 530am because my dad dropped something on the floor upstairs.

I finally dropped off to sleep again about 630am.

only to be woken up again at 8am when Shared Solutions called to harrass me about getting a new box of C (I'm trying to catch up there, I've been 2 boxes behind since the beginning because my injection nurse waited 2 months to call me before I got trained) I told them to call me back in 2 or 3 weeks, and to please not call me before noon.

I kept waking up about every half hour to an hour.

I'm starting to wonder if insomnia can be caused by a brain lesion or something.

I. am. so. tired. tonight...and I STILL cant sleep!!!!
Just now getting back to you.... so sorry about your lack of sleep. How have things been the last few days?
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If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

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Old 02-17-2008, 10:15 AM #23
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DH's knee hurts right now (like mine doesn't 24/7?), so while he whined, offered him my walker. That shut him up. I look good, I treally do!!!
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Old 02-17-2008, 11:00 AM #24
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Shocked has anyone tried amitripyline? also q's about meds and insurance
i am new to this but have not been sleeping. on wed reg doc subscribed xanax to temporarily get me through this--my sister freaked and said asked for something else...neuro gave me amitripyline for sleeping...but it the online description says it is for depression (have had plenty of that over the past few days).

just got back from the big blood work up at my hmo--7 vials of blood--now feeling very lightheaded! (yuck--but at least open on sunday) another question--do any of you have probs with cost of the meds for ms? my neuro suggested i look at the options and now i have another thing to worry about--what appears to be the super high cost of this maddening disease...
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1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
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Old 02-18-2008, 11:57 PM #25
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Default Dear Volada,
Quote:
Originally Posted by volada View Post
i am new to this but have not been sleeping. on wed reg doc subscribed xanax to temporarily get me through this--my sister freaked and said asked for something else...neuro gave me amitripyline for sleeping...but it the online description says it is for depression (have had plenty of that over the past few days).

just got back from the big blood work up at my hmo--7 vials of blood--now feeling very lightheaded! (yuck--but at least open on sunday) another question--do any of you have probs with cost of the meds for ms? my neuro suggested i look at the options and now i have another thing to worry about--what appears to be the super high cost of this maddening disease...
I know how you feel about having another job in choosing a med, when your energy is depleted and you are probably still in shock with the dx. I don't know a lot about the cost of different ones. I just got started.
Still waiting to here from my insurance.

Hang in there!
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HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
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"Thanks for this!" says:
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Old 02-19-2008, 09:56 AM #26
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do any of you have probs with cost of the meds for ms? my neuro suggested i look at the options and now i have another thing to worry about--what appears to be the super high cost of this maddening disease...
yes, especially when I was still working....

I made too much to qualify for gov't aid (Medicaid) and didn't have medical insurance coverage.

my "MISTAKE" was to get Optic Neuritis (and have it in my medical record) just BEFORE I got divorced...

MS turned out to be an "automatic decline" when I tried to get my own insurance.

there are private programs to assist with the DMD costs, ask your doctor, or somebody here probably knows what's available in your area.

that's how I paid for my Betaseron.

and good luck, Volada!
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Old 02-19-2008, 05:25 PM #27
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Ooo i have an hmo--so i should be ok--i think!???
Quote:
Originally Posted by CayoKay View Post
yes, especially when I was still working....

I made too much to qualify for gov't aid (Medicaid) and didn't have medical insurance coverage.

my "MISTAKE" was to get Optic Neuritis (and have it in my medical record) just BEFORE I got divorced...

MS turned out to be an "automatic decline" when I tried to get my own insurance.

there are private programs to assist with the DMD costs, ask your doctor, or somebody here probably knows what's available in your area.

that's how I paid for my Betaseron.

and good luck, Volada!
thanks for your msg and sorry for your troubles!
but i hear what your saying and it is good to know--hopefully this won't lead to divorce for me but i am truly annoyed by my "beloved's" reaction --he seems highly inconvenienced and not really supportive in the way i need...we shall see! having two little kids is hard enough but with ms and working full time-- i sense extra challenges coming on
__________________
1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
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