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Old 02-22-2008, 11:37 AM #1
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volada volada is offline
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Location: Maryland
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15 yr Member
volada volada is offline
Junior Member
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Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
Default when did you tell your kid (s)?

Quote:
Originally Posted by ckepi View Post
Hi and welcome to neuro talk!

I'm glad things seem to be ok at work for now.

I like you was dx very quickly so I know what a worlwind of emotions that can be.

I had my 1st sxs Feb. 3rd of 2007 and was dx Feb.12th of 2007 confirmed by Neuro that day also.

Try to take time for yourself to process how you feel, do some research and come here to ask questions.

There is alot of info out there not all of it is good, the National MS Society is great, I've also found the American MS Society helpful. They tend to have accurate upto date info.

There are many of us here who are more than happy to share our experiences with others. Feel free to ask any thing and know you are not alone.

How old is your DD? Mine is 6, she has been a trooper even offers to help me with my shots . She has no fear of them, of course that could be because I'm the one who has to take them . Hearing her try to say Multiple Sclerosis is cute I've convinced her she can just say MS.

I also work full time and am blessed with a job who doesn't question when I need time off or any thing else. I was suddenly out for a full month last February when I was dx and they never even asked for a drs note.

I have found that I do feel much better now than I did then but it did take a little time to get back to "normal" some sxs took months to fully go away, so don't be discouraged if some sxs seem to stick around for a while.

Know that we are here if you need us to answer questions or just to hear you vent.

Good Luck!

Oh I looked at your post again 5 is a great age my DD was five when I was dx also.
wow--we have a lot in common! i also have 9yrold boy...and was wondering when you told your daughter? i don't want them to be scared--but once i choose a med--it will be obvious if i am shooting things up or in or whatever! i know my symptoms seem to be slowly clearing up but i do feel scared and tired and not so much angry anymore but moving toward acceptance or whatever thank goodness this site exists...it really helps...i feel like some of my supposedly close family members (who all live far away) are having a harder time dealing with it than me

i watched an hbo special on kid's w/tourettes and it made me feel a little guilty for being freaked about this dx....but it also made me realize kids are pretty tough!
__________________
1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
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