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-   -   Just got an email from my eye Dr. (https://www.neurotalk.org/multiple-sclerosis/39633-email-eye-dr.html)

momXseven 02-22-2008 01:34 PM

Quote:

Originally Posted by greenjeans (Post 221656)
Sorry for the hijack Julie :D

That's fine, I'm leaning a lot here. :D

sugarboo 02-22-2008 01:42 PM

Quote:

Originally Posted by Erin524 (Post 221658)
The orbital is of the optic nerve, but I dont know if it's more focused or whatever. I would guess that they somehow zoom in on the area of the optic nerve. I dont know that much about MRI's and how they see what they see. (I dont like being in the machines, so I guess I've never researched how they work much)

I know that the two machines that I've been in are Tesla 3's. If I have to get another MRI done, I might have that done at the University Hospital where the MS Clinic is, since they have a Tesla 7 there. (think it's a 7...it's a brand new machine)

But since I dont want to have another brain MRI because I'm seriously claustrophobic, I probably wont. Spinal MRI's arent so bad, but the brain MRI's scare the crap out of me. I cant stand being strapped down into the little helmet cage thingie where I cant move my head. After that brain MRI, my claustrophobia seemed to get triggered to the point where I dont even like to be in a crowd of people while outside in a big open space.


Thanks Erin,
I do think I'm going to find myself wondering for along time to come....what is really going on! I almost find myself hoping I'll have an attack so it will be looked at again, as a new symptom. I don't know how many times I have to have an attack of some kind for them to take 'time/space' into account. I've had 4 seperate attacks, three of which brought on new symptoms, over a 9 year period. I've never researched MS until the past 6 months, so I had NO idea what I may be experiencing, and since I didn't have one doctor all these years...my records are all over town :o

I'm okay in the tube....I just close my eyes and count the bangs (OCD!) LOL!!!! I feel for those of you who get clostrophobic!!

Bearygood 02-22-2008 01:53 PM

A study of the orbits is different than the study of the brain. And even then, there are different studies of the brain.

Okay, I found the link -- I had posted about the prescriptions for my follow-ups. The orbital MRI referenced "c-fat". I was informed that this is "fat saturation" and is important for post-gadolinium T1-weighted imaging of the orbits.

I don't think it's appropriate to post to another message board here but if anyone wants the entire link, PM me. (The link also explains T2 and flair.)

*edited to add, it's not just zooming in.

Erin524 02-22-2008 01:58 PM

Quote:

Originally Posted by greenjeans (Post 221664)
Thanks Erin,
I do think I'm going to find myself wondering for along time to come....what is really going on! I almost find myself hoping I'll have an attack so it will be looked at again, as a new symptom. I don't know how many times I have to have an attack of some kind for them to take 'time/space' into account. I've had 4 seperate attacks, three of which brought on new symptoms, over a 9 year period. I've never researched MS until the past 6 months, so I had NO idea what I may be experiencing, and since I didn't have one doctor all these years...my records are all over town :o

I'm okay in the tube....I just close my eyes and count the bangs (OCD!) LOL!!!! I feel for those of you who get clostrophobic!!


Four separate attacks in nine years and they still havent diagnosed you? Why wont they diagnose you?

I had three attacks in one year and got diagnosed in four months. First obvious symptom was numbness in my right hip/thigh that a PA misdiagnosed as a sprain. Told me to put heat on it. No one would take me seriously about it.

Then came the ON and again I wasnt taken totally seriously by anyone other than my regular doctor and the optho. I didnt do steroids because they were acting as if this was a first attack. (the neuro and neuro-optho both said that the numb hip had nothing to do with the ON)

I felt like crap that winter. I knew something was wrong but couldnt get anyone to listen to me. Finally went back to my regular doctor because my low back was killing me and my feet were freezing cold/burning hot/felt like I had a boot full of thumbtacks on my feet.

The regular doctor (Dr. C) is such a cool guy. He ordered the spinal MRI's and he's the one who got the neuro to listen and they found two lesions in my spine. I LOVE Dr. C! (the fact that he's total eye candy helps too)

I was really surprised to get diagnosed so fast. I thought it would take a few years.

Bearygood 02-22-2008 02:03 PM

If you have ON and lesions, I don't think there's any faster way to an MS dx!
It's like going to the head of the class with a fast pass! :rolleyes:

sugarboo 02-22-2008 02:06 PM

I pulled my report it says:

REASON: Clinical Data: MS

TECHNIQUE: MRI performed throught the brain, obtaining sagittal T1, axial fat-saturated T1, axial fat-saturated T2, and postcontrast axial FLAIR, sagittal FLAIR, axial fat-saturated T1 and coronal fat-saturated T1-weighted images. 14 milliliters Magnevist gadolinium contrast adminstered IV.


I think that covered the whole enchilada? :D

Wish I was a doctor!

Bearygood 02-22-2008 02:10 PM

I have no clue, greenjeans! It would be good to clarify what type of study it was -- or perhaps you could get a radiologist to explain if it did cover everything. ;)

slskckjebw 02-22-2008 02:15 PM

Oh, ok. This is different than an MRI.

LA



Quote:

Originally Posted by momXseven (Post 221423)
The Dr even told me this and I looked it up online.
http://health.nytimes.com/health/gui.../overview.html


Bearygood 02-22-2008 02:27 PM

Quote:

Originally Posted by slskckjebw (Post 221690)
Oh, ok. This is different than an MRI.

LA


Oh, wow! The link didn't work before. Thanks, slskckjebw!

slskckjebw 02-22-2008 02:31 PM

Bearygood

It is an ultra sound.

LA


Quote:

Originally Posted by Bearygood (Post 221700)
Oh, wow! The link didn't work before. Thanks, slskckjebw!



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