NeuroTalk Support Groups - Just got an email from my eye Dr.

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- - Just got an email from my eye Dr. (https://www.neurotalk.org/multiple-sclerosis/39633-email-eye-dr.html)

Quote:

Originally Posted by momXseven (Post 221879)

Thank you, I have an appt. with the new Neuro-op Tuesday. :)

That is so wonderful, I hope he gets your eye problems figured out quickly and that something can still be done about it this far along.

:hug:

Quote:

Originally Posted by slskckjebw (Post 221690)

Oh, ok. This is different than an MRI.

LA

Both of my parents had one of those tests when they needed to get cataracts removed. I got to watch my mom get hers. It was kind of interesting to watch.

Quote:

Originally Posted by Bearygood (Post 221712)

Yup, spine will do it too! They did find one on my t-spine but that was the last thing I had done and it was post-dx.

Are you having any mobility problems?

Nope, just numbness, occasional wacky vision crap and occasionally some MS hug and spasticity.

Quote:

Originally Posted by greenjeans (Post 221718)

How did they dx ON without the inflamation on the MRI? How did they know? Under the criteria they looked at you, seems to me that

1. They found you had ON (HOW?)
2. Time and space
3. 1 lesion on the spine

My Optho/Neuro thinks I've had ON, but my RK surgery makes it hard for him to see the back of my eye. It causes problems with the ability to see all the way back!

I have the time and space for flairs, new symptom.

I have 1 lesion spotted my the Radiologist, and two by the Optho/Neuro

WHAT GIVES???? GRIN!!!!

Two lesions on the spine.

Symptoms of ON - pain on movement, afferent pupillary defect, giant blind spots that showed up on my visual field test.

Time and space, I had numbness in my hips and legs in April of that year, then I got the ON in august of that year, and then my feet both went numb and were burning, freezing cold and felt like I was wearing boots full of thumbtacks all at the same time. That was when I got the spinal MRI's and they found the two spinal lesions then.

I also think that the day that the neuro diagnosed me, he did a neuro check before he did the diagnosis, and there must have been some neurological weirdness going on in my body that day. Plus, I developed l'hermittes sign that week and it was bugging me that day.

Quote:

Originally Posted by momXseven (Post 218512)

He just emailed me this,

Julie,
Sorry, it took me awhile to get back with you I have been out of town at a conference. . . .

If the MRI's that have been done do not show any typical plaques for MS then it might be in your best interest to be seen by a neuro-ophthalmologist because the field test that was initially done is suggestive for some type of optic neuropathy.

So, do you know if is he still leaning towards a dx of optic neuropathy rather then optic neuritis?:

http://www.merck.com/mmhe/sec20/ch235/ch235d.html

Cherie

Actually I have never heard of an ultra sound of the eye. That would be a little scary! :eek: I would rather go for the MRI of the eye orbits....nothing touching my eye that way...

Hope I am not sounding short in my posts. I just had my first injection of Avonex today and am not feeling 100% myself. :( I feel bad for Julie. I know how difficult it was for me waiting. :(
LA

Quote:

Originally Posted by Erin524 (Post 221938)

Both of my parents had one of those tests when they needed to get cataracts removed. I got to watch my mom get hers. It was kind of interesting to watch.

Quote:

Originally Posted by lady_express_44 (Post 221961)

So, do you know if is he still leaning towards a dx of optic neuropathy rather then optic neuritis?:

http://www.merck.com/mmhe/sec20/ch235/ch235d.html

Cherie

He said in the office he thought it was optic neuritis or retrobulbar and than his wife (the other Dr in the office that I saw) also said she thought it was optic neuritis.

Quote:

Originally Posted by slskckjebw (Post 221976)

Have you ever had an opthalmologist test the pressures in your eyes? It's similar to that.

Glad you got the appt. But just wanted to add, that when my DH needed his follow up with a Neuro Ophl. from his brain rgery we thought there were no Neuro Ophl in my insurance. We had just switched to my insurance. Turns out there was, but they DID approve his seeing the doc he initally saw because it was a f/u appt. BUT only that one time.

I see a neuro ophl too. So its worth a try to ask permission BEFORE the appt so that your insurance WILL cover this appt. Make sure ok?

Good luck

Will be following how you are doing
Warmly Jan

Yes. Everytime I go to the eye doctor, which has been a lot this year. There is glacoma in my family. My mom actually. Oh yes..... and I hate that numb feeling. :eek:

LA

Quote:

Originally Posted by Erin524 (Post 222073)

Have you ever had an opthalmologist test the pressures in your eyes? It's similar to that.